I just worked out who I'd chatted to who had Ewings Sarcoma - Lora Lee (http://www.cancerconnections.com.au/users/loraleeb)... when she was 16 (she's now 38).
She doesn't use this site much any more, but you could send her an email or PM through her profile (she's also on Twitter). She's a bit busy at the moment going through chemo again (for breast cancer) and publishing her second book, but she's a great person and I'm sure she'd love to hear from you.
Her book is really good by the way. Its a bit hard to get in Australia, we found the easiest was is through amazon.uk.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.