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Myeloid lymphoid neoplasms with pdgfra

Kaiwightman
New Contributor
April 2021

Myeloid lymphoid neoplasms with pdgfra

Hi, anyone dealing with the same or similar condition? Myeloid lymphoid neoplasm with pdgfra rearrangement, eosinophilloa with pdgfra mutation ,CEL-NOS or HES, LYMPHOBLASTIC LYMPHOMA with pdgfra mutation? 

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3 REPLIES 3
sch
Super Contributor
April 2021

Re: Myeloid lymphoid neoplasms with pdgfra

Hi there,

How are you going?

Wow, what a mouthful. Is this a variant of leukemia?

Are you having any treatment at the moment?

I hope you are OK.

Looking forward to hearing back from you.

 

-s

 

 

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Kaiwightman
New Contributor
April 2021

Re: Myeloid lymphoid neoplasms with pdgfra

Hi, yes I believe it is a leukemia and I'm being treated with imatinib. it's some sort of blocking pill. 

 

I had been doing well up until this last week and started to experience symptoms I had prior to treatment. Although my recent blood work is perfect and scans show massive improvement. 

 

I guess I'm lost as to what is going on, hoping to find someone with a similar illness. 

 

Thanks for your reply 

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MyheroCoolSpy
Frequent Contributor
April 2021

Re: Myeloid lymphoid neoplasms with pdgfra

I hope someone knowledgeable enough answers this. This is really interesting to know.
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