Hi there, How are you going? Wow, what a mouthful. Is this a variant of leukemia? Are you having any treatment at the moment? I hope you are OK. Looking forward to hearing back from you.   -s     ... View more

Hi, Thanks for writing up about this. Look, to be honest, I don't think that there is a great deal that you can do. Maybe you could ask the children to pass on a message that you are thinking of her and that you are there if she wants to talk/vent. The next step is up to her. Just bear in mind that the fact that your children won't discuss this with you isn't their fault. They have to abide by your wife's wishes no matter their thoughts or feelings on the matter.   Best of luck! -s   ... View more

Hi,   How did your first appointment go with your oncology team? Do you have a plan in place or still a bit touch and go?   Don't worry about the tears. Let them all out!   Yes, the loss of control can be difficult. But at the end of the day, there's still nothing you can do about that either! I've always tried to embrace the changes in my life and accept them for what they are. Things will change again, and then you'll have more control again.   Appreciate the small things in life. Smell the flowers. Sit in the sun and enjoy the feel of it on your skin (but not too much!). Appreciate the amazingness of the fresh air. Live for what you can do, not what you can't.   All the best, s ... View more

I'm looking forward to the spring that starts in September!  😃 I don't really like the cold, so two springs is fine with me. ... View more

Hi Layalk, I'm sorry to hear about what you've been going through. I hope you find some certainty soon. Everybody hates the waiting. How are you feeling?  The anxiety around waiting for test results is just awful.  Try and find a distraction, but I know that it's easier said than done. I've provided a link below that might provide some information for you.   Best of luck and please let me know how you go.     https://breastcancernow.org/information-support/have-i-got-breast-cancer/breast-lumps-other-benign-conditions/sclerosing-lesions-breast ... View more

Hi,   There is a thread that has been running for some time that might be worth having a look. https://onlinecommunity.cancercouncil.com.au/t5/Treatments-and-side-effects/Your-experience-with-side-effects-from-head-amp-neck-cancer/m-p/25626   @CaptainAustralihas documented a substantial amount of information about of his battle.   Take care!   -s ... View more

Hi, It's perfectly normal to feel terrified. The unknown is a scary thing. Can you tell us a bit more about yourself? Do you have family and friends close by who can help support you?   While I haven't had your cancer type, I thought I would share some information from the cancer cancer website. https://www.cancercouncil.com.au/head-and-neck-cancer/treatment/radiotherapy/   It might also be worth calling the cancer council and having a chat if you feel like it. https://www.cancer.org.au/support-and-services   -s ... View more

Hi, I'm sorry to hear about your cancer and your situation. Sometimes it can feel like there is no hope. But sometimes we can find just a slight of hope. You might be surprised. Sometimes when it feels that we have no hope, we can find satisfaction in small things. Have you contacted your hospital's social services?   Tell us a bit more about your self.   -s   ... View more

Hi mensana, I'll be honest with you. We're not always perfectly on topic around here, but that's OK. Good luck with Telstra. It sounds like you're going to need it.   Back to your original post and your doctor's response. He probably feels a bit guilty after you have been discussing these symptoms with him for quite a while. Also, many people are not used to talking about cancer. They don't really know how to respond.   You sound like a tough cookie, at least on the surface. How are you holding up otherwise?   -s ... View more

Hi, I'm very sorry to hear about cancer and all the pain that you've been having. It's such a terrible disease.   It's not unusual for the patients to have chemotherapy first, followed up surgery a number of months later if required. Have you been told that you won't be having surgery? And if so, have you asked why not? What were their responses?   I'm really glad to hear that you're getting a second opinion if you're not happy with the answers that you have so far. Good on you.   Please let us know how you go!!   -s     ... View more