Hi @paul60  I'm so sorry to hear of everything that is going on with you and your wife. It can be a real struggle when it feels as if everything is coming down on you.  How much longer do you have left of your treatment? I really hope that you can get break and get your shoulder sorted (and your health in general). How is your wife going? How are you feeling? ... View more

Hi @Tonti71  Been there, done that, and I have the scars to prove it. My cancer was bowel cancer stage 2a, with the tumour pressing up against the lymph node. I was 40 yo when diagnosed (lynch syndrome) and due to young age and other personal circumstances, I chose to have a total colectomy and chemotherapy (12 rounds of FOLFOX) just to try and ensure that any stray cancer cells were cleaned up. The platinum based chemotherapy drugs (oxaliplatin, cisplatin & carboplatin - there are others, but these are the most common that I've heard of). The platinum based drugs have a healthy list of nasty side effects.  You can help manage these risks by telling you treatment team about any side effects and the doctor can decide to modify or stop your treatment. I had my cancer in 2017 and I'm still here and cancer free.  There is no definitive way of knowing whether the chemotherapy made any difference, but I wanted to give myself every chance possible. Understand the risks and good communication with your treatment team were key for me.   --sch ... View more

Hi @Joca69  I am not the original poster that you have addressed. I under went genetic testing in 2005 or 2006 and they identified a gene. Have you been through genetic testing? ... View more

Hi Jenny, I'm sorry to hear about your diagnosis. I haven't had lung cancer or the surgery you mentioned, but I just wanted to welcome you and wish you well. Sean ... View more

Hi Peter_A, Congratulations on your remission. What an amazing result. It is great to hear your perspective and that you've manage to return to what you enjoy doing. Good on you ... View more

Hi, I'm sorry to hear about your cancer and your family and love ones reaction. I feel that unfortunately it's not an uncommon reaction for people and support networks to disappear. I think that many people quite simply just don't know how to respond/react or process what is going or what you are going through. For many people who might have been lucky enough to not experience major illness or set backs in life, this sort of experience can be completely foreign and they might have no idea what this might feel like, or what someone who has cancer might look like.   How is your treatment and recovery going?   -s     ... View more

Hi @Mary60  Yay for you and getting through all your treatment. What an amazing achievement. What a relief. As for how long until you know you are in remission?  That will depend on your personal situation. Some variables in here might be what stage you were in to start with. Best to check in with your oncologist. Please let us know.  Good luck Sean ... View more

Hi @Kerri62  I'm sorry to hear about everything that you've been through and the loved ones that you've had to lose too early. 27 is certainly way too early. I hope you are ok. ... View more

Hi @Martin61  I'm sorry to hear about your wife's diagnosis.   In my experience, the patient will work closely with the treatment team and they can provide feed back on how you are feeling. The neuropathy in my case didn't come on all of a sudden, but increased slowly over time. The important part here is a good dialog and communication with your treatment team.   I am quite some time post treatment (about 6 years), so I can offer you a long term view to this. I had bowel cancer and received 12 rounds of folfox. Initially it started as just a tingling in my fingers and a loss of feeling in my hands and feet.  Later in the treatment it would result in pins and needles in the face and sometimes difficulty breathing. The doctors and nurses will monitor you closely. As I approached the end of my treatment the peripheral neuropathy got worse.  The doctors decided to stop the Oxaliplatin (the drug that was causing the neuropathy). I was left with some residual loss of feeling in my hands and feet, that improved over time.   -s ... View more

The appointment will come around before you know it. Try to find something else to occupy your mind so you don't spend too much time thinking about it. (yes I know, easier said than done) ... View more