Hi, anyone dealing with the same or similar condition? Myeloid lymphoid neoplasm with pdgfra rearrangement, eosinophilloa with pdgfra mutation ,CEL-NOS or HES, LYMPHOBLASTIC LYMPHOMA with pdgfra mutation?
How are you going?
Wow, what a mouthful. Is this a variant of leukemia?
Are you having any treatment at the moment?
I hope you are OK.
Looking forward to hearing back from you.
Hi, yes I believe it is a leukemia and I'm being treated with imatinib. it's some sort of blocking pill.
I had been doing well up until this last week and started to experience symptoms I had prior to treatment. Although my recent blood work is perfect and scans show massive improvement.
I guess I'm lost as to what is going on, hoping to find someone with a similar illness.
Thanks for your reply
Be part of this supportive community