Mrk, I've learned that oncologists follow the standard procedure and can not predict when it is sufficient to stop. They slap you with 18 rounds of the chemo treatment. PC sufferers are all different and many factors should be considered when prescribing this treatment. My partner could not tolerate the Gemcitabine so we decided to stop after round 3. She has felt pretty much the same as you when she was on it. It has been now more than 2 months (29/3/11) since she had the last round and she is feeling excellent. She went to see the surgeon and he was positive. She is going to see her oncologist in about a month. It has been 6 1/2 months since she was operated on and if she did not know she would not know she had it. The last CA 19.9 test was 32. Only her WB count is slightly lower. The liver test was normal. Other than that we are focusing on making sure her immune system is where it should be - strong and kicking. We consider vitamin D very important (over 100 now). Energy levels are up (vitamin B and E). She takes American PawPaw capsules + lots of garlic, papaya, black seeds, turmeric, and avoids meats (kangaroo and fish + some chicken a couple of times a week) but she compensates with protein shakes. Read my blog for more info.
We are positive and optimistic. There are down days but it is usually psychological issues than physical. We do not regret calling off the chemo treatment and we consider it to be the best decision we've made. Ultimately it is you who will decide how to go about it, not the doctors. Be proactive and make sure you are one step ahead of what they tell you. Keep everything in check and do not take their "she'll be right" attitude, if they display it. We have been told check ups every 3 or 6 months for CT and blood tests but we to the blood tests every 4-6 weeks. We alternate between 2-3 doctors. At this stage it all seems to be under control. Any questions? Contact me either here or on my PM...happy to be of assistance if I can.
Good luck and all the best!
