Paraneoplastic myolitis

[Anonymouss]

Hi all,

I was diagnosed with lymphoma last year and due to my age, the doctor was confident in a successful treatment with chemotherapy. However, after the chemotherapy sessions, I began to experience severe muscle weakness and was recently diagnosed with Paraneoplastic myolitis - a form of autoimmune disease where my immune cells attack my body cells and cause muscle inflammation.

It has since left me bedbound and I am currently in immense pain.

Is anyone experiencing the same condition or does anyone know any effective treatment? Would apppreciate any form of answers.

Cheers.

[Katekat]

Hi @Anonymouss and welcome to the community, I've moved your post into the Living with cancer forum just to help get it a little bit more visibility.

Sorry to hear you're in such pain 

Has anyone else here had paraneoplastic myelitis? Or does anyone have any suggestions you've tried or have heard about that might help Anonymouss with treatment or pain management?

Here are some resources you may find helpful, the podcasts and webinar can be accessed from laptops and mobile devices such as a tablet or phone:

• Managing pain after cancer treatment - webinar
• Overcoming cancer pain - pdf book
• Complementary therapies - pdf book, a lot of the suggestions in this book would be worth investigating to help alleviate and manage your pain
• Managing cancer pain - podcast, not just for those with cancer, it covers pain management during and after treatment