Hi @HopefulSoul,   I know this is a difficult time for you all.   To help you and your Mum in your caring roles, please contact the following: National Domestic Violence Hotline - 1800 737 732 Carers Australia - 1800 242 636 Family and Relationships Australia - 1300 364 277 Could you perhaps visit your Mum's GP with her and talk them about what is happening for your Mum and Dad? Talk with the GP about supporting both your Mum and Dad. ... View more

Morning @Gayle and welcome!   How are you going with your treatment and your search for a wig?   Just thought I'd mention Cancer Council QLD have a partnership with an organisation called ESA and they provide wig and turban services across QLD. You can find out more about that here, including contact details.   Do let us know how you get on    Cheers, Kate Online Community Manager ... View more

Morning @anneidril and welcome to the community!   How are both yourself and your mum doing today?   Our team here at Cancer Council has put together a fantastic book on understanding clinical trials and research, you can download the pdf version for free here.   One website I can think off the top of my head would be the Clinical Trials knowledgebase maintained by Rare Cancers Australia, these are ones that are currently recruiting and you can visit that one here.   There's also a section in the book I mentioned above with some additional websites that are worth taking a look at on page 38-39.   Cheers, Kate Online Community Manager ... View more

Morning @Penpal,   How are you this morning?   Regarding your questions about travel insurance, this is something many people have difficulties with but there has been some constructive information sharing in other threads in the past.   I did a search on travel insurance and the following threads might be worth taking a look at: Travel Insurance 5 years later Travel insurance Cheers, Kate Online Community Manager ... View more

Morning @belladeka,   How are you doing today?   Sorry to hear about the pain you've been experiencing, that must be incredibly debilitating for you    I had a quick search on the TGA (Therapeutic Goods Administration) information available on Lonsurf and couldn't see anthing about back pain in there. You can access the information here (just hit agree on the splash screen to access it) and check out all the known side effects.   Has anyone else had any experience with Lonsurf?   Cheers, Kate Online Community Manager ... View more

Morning @HopefulSoul,   How are you all doing this morning?   I had a quick chat with my brainstrust - our 13 11 20 Information and Support consultants - who are all qualified health professionals, and their recommendation is to get in touch with your Dad's oncologist and/or doctors as soon as possible and let them know what is going on.   Fentanyl alone can account for some of the side effects your Dad is experiencing - you can read a little by more about that here (just hit I agree on the splash screen & see page 4 for the side effects). And with the cancer in his liver, your Dad's body may be metabolising the different treatments differently. Also get them to check how his cancer is going too. It could be that they need to just adjust his treatments, but please tell them everything.   Is your Mum ok? Please seek help if you haven't already. The National Domestic Violence hotline is accessible 24x7 and is a free call -  1800 200 526. You can remain anonymous if you need to.   Please do take care and let us know how you get on    Kate Online Community Manager ... View more

Afternoon @girlhorn,   Sorry to hear about your experience, especially now that you're facing having your vocal chords removed on top    Can I suggest you take a look at this thread? It's a thread started by someone with a cancer that began in their tonsils and discusses a lot of the side effects and issues faced by people with cancers of the head and neck region. It's also incredibly active and every poster is very supportive    Cheers, Kate Online Community Manager ... View more

Afternoon @gerry ,   I just wanted to check in with you and see how things are going?   Sorry to hear you are still experiencing side effects. Can I suggest you take a look at this thread? It's a thread discussing all kinds of side effects from cancers of the head and neck region and I think you'll find it very helpful as well as the posters in there incredibly supportive    Cheers, Kate - Online Community Manager ... View more

Hi @Sylvia1212,   There are definitely a lot of stories here in the forums about people going through chemo. Has anyone got a personal experience with chemo they would like to share?   You may also like to take a look at the following resources ahead of your treatment: Understanding Chemotherapy - pdf book Appetite Loss and Nausea - podcast Managing cancer pain - podcast Managing cancer fatigue - podcast ... View more

Hi @Stephnash,   I just wanted to check in and see how you are doing today?   Have had your appointment yet with the new ENT? If so, what have they said? Did they do the endoscopy?   I am glad you have sought a second opinion, something sounds not right at all. Please do let us know how you have been getting on  ... View more