Now you can all sit back down.
I guess everyone has a story to tell, so here's a breif overview of mine so far. I was diagnosed at age 10 with Hereditary Glomerelo Nephritis, specifically Alports Syndrome. This effects renal (kidney) function and by the age of 22 I suffered end stage renal failure, meaning dialysis. I did that for 2 years (and met my wife) and then was offered a kidney by my sister. The transplant was successful for 7 years during which time we had our first child, now 8, but it then slowly rejected. Back onto dialysis again for about 4 years and having another child, then as luck would have it I was called into the hospital late one night for another chance. I grabbed it with both hands and have been trying to make the most of it ever since.
My son is 8 and my daughter is 4 next month.
Last November I was told that my liver function was declining. I was told to ease off the grog, but that's a bit hard whrn you're a non drinker. Tests followed early this year after a trip to the south to (successfully) climb Mt Kuskioszko and I was informed that I had Constrictive Pericarditis. This is calcification of the muscle that surrounds the heart and is a side effect of dialysis. At this stage thankfully I had slowed my heave boozing days (remember I don't drink) and my liver finction was looking better. An MRI and CT scans for the heart condition showed a shadow on my upper left lung, and .... wait for it ... that's what has led me here.
2 weeks ago I had a biopsy and was informed last week that I have small cell lung cancer, which may also be neuroendocrine carcinoma. During my heavy boozing days apparently I was smoking quite heavily. Oh, forgot to tell you , I never have smoked either. OK, there was this one time behind a feriends shed and if I recall, maybe I inhaled.
Today I met with the oncologist and it is fortunately (I think I can still use that term!) a slow growing type, so they are planning to attack it with chemo and radio starting Thursday. Surgery is not an option, apparently. Caroplatina and Etoposide are 2 names that I have scrawled on the notes from todays meeting. Research day tomorrow at work (while the boss isn't looking!)
I guess by now you might notice that I cope with all of this with humour. That's my out. I will probably just be a voyeur here rather than too much of a contributor, but I welcome emails from ppl who might want a chat or similar.
BTW, you may notice that I look fairly shagged i my avatar. I was the highest person in Australia with my feet on terra firma at the time that pic was taken.
Anyway thanks for the ear. Must log out, I don't want to miss my beauty sleep.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.