Hey everyone.
So I was diagnosed with pancreatic neuroendocrine cancer and underwent a whipple surgery to remove half of the pancreas duodenum bile duct and gall bladder. The operation went well. Fast forward to Oct 2024 and I started getting dark stools (sorry tmi) which was caused by bleeding ulcers where they had joined everything. Ever since then I've been in and out of hospital and tried all sorts of medication (they call it triple therapy) and I ended up having a revison of the surgery. That was 5 weeks ago and again I'm back I'm hospital with bleeding amd low HB levels basically anemic. I've been here 2 weeks and they can't find the cause. They are planning to get me stable and send me home but I'm so worried that it will happen for a 3rd time. They are good at treating the symptoms but they can't find the underlying cause and its causes me so much anxiety. Has anyone else had experiences like this? The cancer I have is slow growing and generally by the time iys found its stage 4. I feel somewhat dismissed by the medical team.
Sorry to rant on I just needed to put it all out there
