Awaiting scan post-treatment

[Mel7000]

Hi, I was diagnosed with Hodgkins Lymphoma 4 months ago and have just completed 4 cycles of the escalated chemo program. Due to where the tumour is/was located, radiation wasn’t an option. I found the side effects of the escalated chemo debilitating on so many levels. 
No scans were taken during this time and I am now waiting for my PET scan - 4 weeks post final treatment to see if it was all worth it and if the cancer has gone. It’s always on my mind and although I am trying to live for the present,  I feel like I am in in limbo and life is on hold. Has anyone else felt similar at this stage in their journey?

[Felicity_CCNSW]

Hi @Mel7000 , 

I'm so sorry chemo has been such a challenging experience for you. Many people I speak to find waiting for scans extremely challenging. "Scan-xiety" doesn't really cover the sense of uncertainty that it sounds like you are experiencing. Be gentle with yourself. It sounds like you are doing your best to be present. Engaging in things you enjoy and having small projects can be helpful. 

If you are in Australia please know that you can call Cancer Council Information and Support Line on 13 11 20 and speak to one of our health professionals for support. Cancer Council also has a useful booklet on Emotions and Cancer. 

This forum is a wonderful place to connect with others who understand. Perhaps others can share their experience?

Take Care, 

Felicity

Supportive Care Specialist CCNSW 

[LindaG]

Hi Mel7000, I was diagnosed with non Hodgkin’s lymphoma in 2021 and had 6 rounds of chemo called RCHOP. It was very hard with the side effects and yes, waiting the results of the final pet scan was just so upsetting. For me it was good news and my treatment worked. It’s took a few months to recover from the chemo but I’m good now. Hallelujah 🙏🙏. Sorry you have to wait so long to get the scan. The waiting is the hardest part!  I hope and pray that you have good news when your results finally come through. Sending you love and prayers 🙏♥️. LindaG 

[Mel7000]

Thanks so much Linda. It’s just nice to know I’m not alone and there is (hopefully) light at the end of the tunnel! 💕🙏🤞

[Mel7000]

Hi Felicity

Great advice and support - thank you! 🤗

I am in Australia and took myself for a gentle walk in nature today - a place where I was an active hiker pre cancer. It was wonderful to reconnect to something I loved doing and felt well enough to go back - even at a very slow and gentle pace!  It calmed my thoughts.
I have noted the contact number.

💕🙏