I was initially told I had one thing, then the other and finally after retesting a larger part of my tumour they confirmed I had metastatic
leiomyosarcoma which is a rare form of soft tissue tumour. After a lobectomy to remove one tumour I asked the surgeon more information. He was a loss on this type of cancer. I have since researched online more information which has helped, but has also heightened my anxiety without being able to consult a doctor. So I am at home recovering from this surgery waiting to head my surgeon to remove another two tumours one on my left lung and one on my ovary. I was also told that the fibroid removed 7 yes ago when I had a hysterectomy was the same cancer. I wondering if anyone else has had this type of cancer and how they coped waiting…
