Hi Rosey,
The Drs discharged Luke from hospital on Friday afternoon, but asked us to stay in the apartment across the road from the hospital over the weekend, in case there were any problems. Everything went smoothly and we attended the outpatients clinic on Monday afternoon to get the final OK to go home. The surgeons want to review him in early January and will set a date for the stoma reversal then.
We got home late Monday evening. It is still very up and down, but Luke is gaining weight and strength. He is still quite nauseous and is constantly exhausted, but he is working hard on putting on weight and rebuilding his muscles.
There is lots of work for me to do, as he can still only have thickened fluids and pureed food and he has to eat every couple of hours, because his stomach has shrunk so much from not eating in over 2 months. He also needs to eat frequently because so much of his digestive system has either been removed or disconnected that it doesn't absorb as much nutrition or fluid as it should.
He is being seen as an outpatient at the local hospital by the dietician, physio and speech pathologist. Hopefully they will approve him to eat and drink normally on Tuesday.
Still waiting on Queensland Health to reimburse me for accommodation expenses.
I hope your husband is doing well and your own treatment goes smoothly and by the book.
Best Wishes
Delirium
