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- About vinouche
vinouche
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March 2010
November 2016
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March 2010
I was born in France, migrated to Oz aged 14, lived in Melbourne for 11 years, migrated to NZ and lived there for 25 years, came back to Melbourne 3 years ago.Love all 3 countries.
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March 2010
Yes I have 2 books under way, one about my life in 3 different countries (I am French) and the other is amusing annecdotes about how to handle my two adhd boys ( now grown up). I thought it would be good to hae a feel good story forum here, with funny or nice stories not necessarily to do with cancer for when we feel a bit down, it is always good to have a laugh.
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March 2010
Thank you Katie,
I had forgotten that I always wanted to learn calligraphy, and you have reminded me of it, so I will see if I can find a course near me. I am taking someone with me for the simple reason that I know I will forget what the doc says, and also for support. Thank you all for the support, I feel better knowing you are around. I have almost tidied all my affairs, and can now concentrate on improving my health for as long as I can, anf enjoy my family.
Sylvie
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March 2010
I think it is wonderful that you are aware how precious your time with your dad is. I spent every minute I could first with my dad then ten years later with my mum looking after her. I know my brother and sisters missed out on that time as they lived here in Oz and we didn't. So make the most of it, because you can't catch it back. My daughter is now moving here to be with me and that is just as precious to me. So keep loving your dad and your mum and be there for them both.
Sylvie
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March 2010
Thank you for that, I guess another thing for me to learn is that as I lose more of my independence, I will have to rely on these good friends to help me. It is so much to absorb and rethink all the time.
Sylvie
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March 2010
Yes I do have friends that go with me, but as you said it is harder when we know/think we won't like the answer.I am seeing oncologist next week before next cycle and have written some questions for him to make sure I do ask them. Knowing me I will either forget the paper or will be too embarassed to ask them. I am more fortunate than most is that I do have support from family and a couple of friends, but they do have a life and I am very conscious not to ask too much of them.
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March 2010
Thank you again Julie, it is nice to feel I am not alone. I think I need to ask my oncologist more questions, I am just a bit scared of the answers.
Sylvie
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March 2010
Thank you Julie,
I haven't managed to bring myself to ring the cancer help line yet. I find it really hard to talk, but easier to type. It is all so scary.
Sylvie
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March 2010
Palliative care is what I have been offered.I went from feeling fine, just a lump in my neck to being told three days later that all they can do for me is make what is left of my life more comfortable and see if they can prolong it a bit. So I feel fine, I look fine, second cycle of chemo was pretty unpleasant but nothing as bad as I have read from some of you lovely people, the outcome is my tumours have shrunk drastically. I still have my hair, some of it is falling out but not that much. I have read about stage 4 lung cancer, the prognosis is very poor, but I am struggling with reconciling my lack of symptoms with the gravity of my situation. No wonder my middle son is in denial, he does not comprehend it when he sees me looking so "normal". I think the morphine patches are hiding most of the pain, I do get some from time to time so just take a tablet.
I have to admit I am petrified of what is to come. I know it will get much worse, and I think I would be willing to put up with what some of you are putting up with if there was a chance of cure.
I do not want to know how long I do have, but I do want to be prepared for what is to come, what to expect. I would welcome any comments, or insight any of you may have. There does not seem to be many lung cancer sufferers in this forum, and I therefore feel a little lonely.
I thank you all for reading.
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March 2010
Congratulations, yes if it is operable it is a good thing. I gave up the gigs 2 months before diagnosis, a bit too late, my cancer is not operable and advanced. I did discover tablets that my husband has taken called Champix. They are prescribed by the doctor and have worked extremely wel for my husband who had tried everything else. So if your mum is still struggling try them.
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