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purpleangels

And your mum would be very proud of that post.......thoughts go out to you...... Peace to you and your family. PA

purpleangels

Hey Maddie! Good to hear from you! I am one of the lucky ones in that my friends and family have been incredibly supportive (two mates I have known since Year 7 in high school)..... My husband has struggled in that his mates haven't kept in touch...well they have and did in the beginning, but because he was asleep or in pain or didn't feel like talking, it is human nature that slowly over the two years since he was diagnosed, they have dropped away. This is very hard for him- a very social being! But I think it is most important for you to go out with your mates, both with and without your partner.... Sometimes the very last thing I feel like doing is going out and smiling and talking....but the times I have forced myself to do it, I have been okay. And haven't thought about my situation for a short time. I reckon that you hang out with people who won't care if you burst into tears for no apparent reason, will give you a cuppa (or a gin) when required without you asking for it, who will make you dinner/buy you dinner if needed....and who genuinely care for you. And unfortunately, there is a very short supply of those magnificent people.... BUT! We are all here for you and can respect and understand what you are going through and how you feel. Positive vibes coming your way! PA

purpleangels

I have just read that post again for the first time......ahhh how quickly things shift..... a few days of poor eating and the poor darling man is right back in bed, no acupuncture, missed appointments with GP and onco to see if radiation was successful......He just can't catch a break! But we battle on, and maybe tomorrow he will have a good day, be able to eat, his medication might work, he may be out of pain, he might get out of bed...... And the story continues as we roll increasingly faster to two years since his peritonectomy! and the start of this insanity!

purpleangels

Hi there too 89nicole! I used to wonder after my husband's diagnosis if I would ever wake up again and not think of that word- cancer- as the first thing everyday.....it has taken awhile, but more days now are spent woken up by my 2 year old demanding breakfast.....no time to think of that word! Go with happy- a very good place to be. Welcome! PA

purpleangels

Welcome Ruairi! Glad to hear your first chemo experience was an okay one.....And congratulations on your wedding! My darling husband has cancer and I am totally his CEO- so I am glad someone else calls herself that too! This is a great place to check in and share experiences and wisdom- and fears and struggles.....Good luck with your treatment! PA

purpleangels

Congratulations and thankyou for sharing your good news! Gives hope to us all! PA

purpleangels

I completely agree about eh retelling the story debacle.....We now take the initial diagnosis sheet and the discharge summary with us wherever we go, whenever my husband gets picked up in an ambulance, when he has a new doctor, when we walk down the street.....It saves way more time! We already have a Medicare card, surely this information could be linked to that in some way. We could waive the privacy deal if need be....My husband doesn't care who knows that he has cancer, if they can assist him, awesome! It is a very frustrating experience, but I wonder if having to tell and retell the story is a way of 'coping'- the more you hear the story, the more it becomes real, the faster you move through the Kubler- Ross 7 stages- to acceptance and the commitment to the 'fight'. Just a thought! PA

purpleangels

So- have a chance to write....it has been a while. My darling husband has been out of radiotherapy for a month, has been undergoing acupuncture and taking chinese meds....and has been stronger, more alert and pain free for longer and longer periods of time. So- he goes for his scan in a week and then we find out if the radiation shrunk the tuomours in his spine. He has been a new man since visiting the Chinese Doctor- we did see one in Sydney two years ago before his operation, who detailed to me what parts of his body the surgeon would operate on, without seeing scans or reports...and then when his surgeon called me to say what they had done, it was the Chinese Doctor's voice I could hear, it was almost prophetic how spot on he was. In all of his treatment, we had forgotten about his success with the Chinese meds in Sydney, so when a friend suggested we see one on the Gold Coast, we went for it- and I am pretty impressed with the results. Even if it is only a mind healer, it has worked absolute wonders. He has been out of bed for three days in a row- he walked our daughter to pre school- he has never done that before! He has been playing guitar again, eating and even his bowels have been behaving themselves more often (he would kill me for saying that! Nah not really, he's a bit proud of it!) He is still not cancer free, but pain free is better than nothing! And he has been playing with our son on the swings......Fingers crossed this is the break he has needed! PA

purpleangels

Hey Maddie! That is wonderful! YAY! Some light in the dark dark tunnel.....ALthough still a massive way to go, but a moment of relief. Enjoy and thinking of you! PA

purpleangels

Thoughts are with you and your sister and hope that she makes a good recovery.....Complaining is a great sign- especially when they tell the physios to get lost! They really made my husband snarl.... PA

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Re: Countrymen; Lend me your Breast!

The times they are a changin'

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