March 2009
Hi Everyone,
I hope your all travelling well and enjoying our new site.
We've had a bit of bad news of late. My husbands cancer has reared it's ugly head again. We received his CT scan report yesterday, his cancer is advancing. Were back on the roller coaster ride of doctors, scans etc.
You can read my husbands post or blog. He's under the name of Wazza.
Cheers, Merkel
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March 2009
Hi everyone I would like to share my journey with you, to give strength to others. In February 2002 I was diagnosed with Merkel Cell Carcinoma a very rare & aggressive cancer. My MCC had metastasised from the primary site in the middle of my chest to a lymph node under my left arm, stage two. I also had removed 3 SCC's & BCC's. My treatment for MCC consisted of Carboplatin, Etoposide Chemo & Radiation, jointly. I have ten radiation tattoos on my upper body. It wasn't an easy trip. Thanks' to my carer Dr Peter O'Brien from the Mater Hospital Newcastle a member of TROG. Transtasman Radiation Oncology Group had finished trials on Merkel Cell Carcinoma six months earlier. Their trials & treatment saved my life. I can't thank the staff at the Mater Newcastle enough, for their professionalism & compassion during my five years of treatment there. Just when I thought the clouds had cleared three years down the track. I went for my three year checkup, still clear. I was over the moon, you don't usually get that far with MCC. I knew I was on the right road to survival. Two days later, my husband was diagnosed with Bladder Cancer - Muscle Invasive, that was March 2005. My world once again collapsed. I kept saying this can't be happening, not again. I felt over the last three years I had clawed my way up this steep dark muddy hole, as I reached the top & felt the sun on my face the mud gave way & I fell right back down to the bottom, just to start the climb all over again. My husband had two operations, the first operation to remove the tumour. The second operation was nearly thirteen hours, he was lucky enough to have received a Neobladder, that's where doctors removed 42cm of his bowel & reconstructed a new bladder from his bowel, joining it up to his internal plumbing. It's now three years since his operation, he's had a few hiccups along the way, so far so good. Another visit to his oncologist in December. Then, yes, there's more. January this year 2008 another three years on, my brother was diagnosed with Bowel Cancer, by the time he was diagnosed the cancer had metastasised to his liver. He passed away twelve week's later on April 1st, 2008. My grandfather died of carcinoma of the stomach, my father of a Melanoma, my cousin of lung cancer, that's now six family members diagnosed with cancer. Update: My Aunt has just been diagnosed with Bowel Cancer, Metastasised to her liver. Diagnosed 7/2008. That now seven family members diagnosed with cancer, two with bowel cancer this year. Having a full physical checkup, I can't stress this point enough. Early detection is the biggest cure. The moral of this story is, early detection, skin checks essential, that's when my MCC was found, I was at the cross roads. I made the right turn on the road by having regular checkups. That's why my husband & I are still here today with the help of great medical staff. I hope you will do the same, go today, don't delay. Merkel
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March 2009
Hi Rarbie, I have just read your post on SCC. I hope your doing well in your treatment. Just to give you some support, I'll tell you about my skin probs. I am a six year survivor of Merkel Cell Carcinoma it's very aggressive, I've also had three SCC's and many BCC's. My MCC had metastasized to a lymph node under my left arm. I was stage two, after Chemo & Radiation I'm still here, if there's any questions I can help you with don't hesitate to ask. I'll give you some of the experiences I've had with cancer in the past. My father had a melanoma (Deceased) My cousin lung cancer (Deceased) Myself 2002 Merkel Cell Carcinoma, SCC & BCC Husband 2005 bladder cancer muscle invasive TCC Brother 2008 bowel cancer (Deceased) Be strong, there's a lot of support if needed. Merkel.
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March 2009
Hi Bev, Getting over heated?. I'm not sure if it's chemo or radiation or both, can bring on early menopause, check it out with your doctor. Merkel
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March 2009
Hi Margro, I have just read your post, your suppose to vent, your telling us how you really feel, let it out, don't hold back. Your not alone with these thoughts and feelings. That's what this web site is for, to help and give support to others, from people who have already been there. I know you have read my post. I'm a six year survivor of Merkel Cell Carcinoma, my husband was diagnosed 3 yrs later with Bladder Cancer muscle invasive, six in our family have been hit with cancer, my brother only survived 12 week's. My husband and I ask. Why have we survived?, and not the other four family members. I know how your feeling, one minute you feel on top of the world, then with no warning, a dark cloud passes over you, you start feel down and think the worst. When you've been diagnosed with cancer, life is never the same again. You look at life differently, things that were important to you aren't anymore. There's a very old song I remember my mother singing, and it goes something like this. "Just pick yourself up again, dust yourself off and smile, smile, smile". You've gone three years, that's a great, my husband has gone three years too. So let's support the two of you to the 5 year finishing line. Do what you did in the city to surf. Your a survivor. Best wishes, Merkel
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March 2009
Hi Margro, Survivor guilt, I understand what your saying. When my brother was diagnosed with Bowel Cancer, I was a six year survivor, he past away twelve weeks' later, he didn't have time to come to terms with what was happening to him, the only option he had was medication to stop the pain. The guilt I felt and still feel. Take care, Merkel
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March 2009
Hi Annie, I've just read your post, sorry your going through a terrible time at the moment. I can't give you any advice on your condition. I do hope and pray that things will improve for you soon. Take care, Merkel
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March 2009
Hi Michele, Congratulations on your invitation. Your story is well worth sharing with others. Everyone will want to hear all about your journey. Merkel
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March 2009
Hi Sham, Congratulations on your success. Wow! what a Christmas present. Best wishes to you and your family. Merkel
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March 2009
Hi Quijote, Welcome to the Survivors Club. Congratulations on finishing your marathon. It's the best news anyone could receive. I'm so pleased for you. Are you planning anymore holidays, now you have the green light. Were off to the Great Barrier Reef soon. Next year to Alaska. Being a survivor it makes you realise the important things in life. Best wishes for the future, Merkel
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