I like it, talljohn ... View more

Think about it carefully before making a decision .Talk to others who have been through this. If you like I can give you other sites to use .I have not had this but know others have.If you ask here people can tell you of their experiences . At least you have a bit of time to think.If you have it done what are the benefits regarding eating after 12 months? I hope you talk to family and/or friends as well. Taik soon.I must get ready for bingo. ... View more

Clever. I agree that we have the choice to stop living and sit and worry or keep doing what we like for as long as we are able. ... View more

I just found the rest of your reply. I was a retired primary teacher but before my surgery was doing relief work but didn't and still don't feel comfortable about facing young children as I don't feel that I look normal. Friends and family and the doctors say it's not that bad but even adults that I've just met have asked me about it so I know kids would,some would. My grandchildren are 15,13, 2 and 5 months.The older 2 accepted it and the 2 year old was only one so can't remember anything different and the baby wasn't even born. I have a 6 month old grandaughter in Sydney also. I live on the Gold Coast. I look forward to hearing from you in the future . ... View more

Dear Lynette, sounds like a difficult time-3 ops to remove the tumour. I had one in February to remove a large "polyp" in my nose, but it turned out to be cancer.Next scans and tests and biopsies to check the spread,then the final op and radiation as the doctor couldn't get a clear margin behind eye sac .In December an MRI showed no cancer. I have my next MRI in 5 weeks. What kind of cancer is yours?How are you coping? I ... View more

It sounds like you had a different cancer to mine which is adenoid cystic carcinoma. ACC is very rare but from what I've read any nose cancer is rare. I had surgery and radiation last year. The hardest thing was and still is changed appearance .Is that true for you? I am 60 and living with looking older was enough without this. My eye bothers me more because people notice straight away and sometimes ask what's wrong with it. I don't mind them asking but I do mind that it looks weird. My nose is not the same on one side now. How do you find your new nose? Are you coping ok? I know that this sounds as though I am only concerned with my looks .Of course I am not.I am ever aware that although they seemed to have killed off the residual with radiation this cancer always returns ,usually metastesising in the lungs,if not recurring locally. Also there are side effects like nasal swelling and crusting in the nasal cavity and nerve pain .I can live with those .We all have to live with whatever our cancer did to us. I hope you get what I am trying to say .I also hope you are going ok.Despite my little whinge I am going ok most of the time.I know others are worse off than me. I look forward to hearing from you. ... View more

Sounds really good that you have found that group in your area,especially now since you have had the sadness of your dad's passing. ... View more

Well I must say you got a lot of responses to this.That's how it goes sometimes.I am only fairly new here and see lots of good feedback.Stay and keep talking . ... View more

I forgot to say that some people have more time to respond than others. I wonder how many are one-finger typists like me as I never learned to type. ... View more

I believe "To each his own". I use 3 other websites as well as this one and find that although some entries may noy get many responses others get lots. We have to accept that but I do know what it can feel like if nobody replies. I use the adenoid cystic carcinoma site because that is the cancer I have. I have asked some members how they are going at times and not received an answer,so decided they may be ill,in hospital, busy ,no longer using the site or didn't feel like saying anything. I was a little disappointed at first but don't worry about it. There is also a place there to open a discussion and since I've never seen it used decided to start a discussion.After a week or so after no response I removed it. On another site there always seems to be at least some replies, often many.Of course there are more people using some sites. On my other site there is a group for my cancer but very little is new when I check . I also think that it takes time when you are new to a site to learn how to use it and find your way around it and some find it hard whilst others may not.On top of that we have different needs and wants and different personalities. ... View more