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Minx
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September 2012
November 2016
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April 2013
Jo
Please take care of yourself.
I can not believe how quickly things can turn so bad.
Hugs
Min
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April 2013
I hope that you may find comfort/answers/support here with others who are also caring for GBM partners. It has been 17 months since my husband was diagnosed, he is now back at work after his 2nd craniotomy/radiation and doing chemo. I do not know how he does it, but I believe it is his way of not 'thinking' about cancer. Live day by day as cliched as that may be.
Cheers
Minx
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March 2013
Far out...
I can't think of anything to say, but know that there are people thinking about you both as you go through this. Enjoy what you can together, memories, jokes, photos, bikes and family.
Min
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March 2013
Yesterday was our 1st oncology visit since radiation finished 3 weeks ago, we are about to start on a new course of action with Temodal and Procarbazine. Feeling very anxious with the thought of all the foods and drinks that he can't have for the next 3 weeks. I am hoping that it really doesn't set him back emotionally as he has always had such a great attitude. May seem insignificant to others but the fact that he has still, up until now, been able to enjoy a couple of his homebrews has kept some normality to his life.
I am having difficulty getting my head around it, can only imagine how he is feeling.
Anyone have any experiences with Procarbazine?
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March 2013
I imagine it is like all of the other treatment options for GBM some work for some and not for others. I plan to start reading up on avastin myself as who knows whats around the corner for Pete.
Best of luck.
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March 2013
I went to last years forum in Sydney and personally got alot from it. Hope to get to this years event too.
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February 2013
Ha less then positive is right on. He is doing well in regard to any disability, he can't wait to get back to work once radiation is complete. I think being stuck at home with three kids for the entire school holidays had something to do with that.
Coffee sometime sounds good.
Min
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February 2013
Wishing you all luck, every MRI has such an emotional build up, I hope the wait for results are not too drawn out.
Min
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February 2013
Jo
We have the same team at POW, with our wonderful co-ordinator I feel comfortable and confident that we have the best treatment options for him, for where we live. Discussion of follow on chemo sounds the same as your husbands. Until now we have been fortunate to have only had dex for a few days following both surgeries, so will be prepared for that.
His drive to fight this has to date been awesome, I hope this stays true for some time.
Min
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