December 2019
1 Kudo
Hi @aina_abdullah, I am a guy and so what would I know about "real" pain, but... I had to do a search to find out what a colposcopy is. OK, I am not likely to encounter that too soon. But on reading several sites (incl https://www.healthdirect.gov.au/colposcopy), they seem to indicate that the procedure should not be painful - a possibility of discomfort if they need to take a biopsy, but not "painful" per se. From this, I expect that it would not be as painful as childbirth, nephro/ureterolithiasis (kidney stones), pancreatitis, cholecystitis (gall stones), chemotherapy, ... In my defence for enduring pain I have been through all of the above except for colposcopy and childbirth - I found the pancreatitis to be the worst. Perhaps have a stiff drink (or two) half an hour before the procedure? Hugs and best wishes for your treatment. And let us know how it goes. Rick
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December 2019
2 Kudos
It was only 2 weeks after starting a new sub-contract position with a new organisation when I got my diagnosis. Even though I was a sub-contractor, the managing director told me that he would find me a role - part time or full time - whenever I felt ready to to return to work after treatment. That sure took a huge weight off my shoulders. And he kept his word 🙂
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November 2019
1 Kudo
Hi everyone, This board might not be the right place for this, but I hope that people find this both to share their experiences and to learn from others. The title of yesterday's webinar "Stuff mates don't say" really sparked my interest (rightly or wrongly - gals can be mates too) in men's issues, and whether there really are men's issues. So this is a first in a series of questions that I would like to pose to all of you out there. How did you go about disclosing your diagnosis of cancer to your: Partner Immediate Family Extended Family Friends The rest of the world For me (sorry if this is a bit long)… Partner – My wife been “with me” throughout my journey except for one occasion. It was Easter Monday. I was out in one of the paddocks on our farm when I noticed that I had missed a phone call from an undisclosed number. I called the phone message bank and there was a message from my gastroenterologist (GE). I had been in for a gastroscopy the Thursday before in response to experiencing difficulty swallowing. Hmmm… a specialist calling on a public holiday – that can’t be a good thing. I tried calling the GE straight away, but he was not answering his phone. I figured that I would have to wait until the next morning to get through to the GE. I did not tell my wife about this call; no point having her worry when we didn’t know what the call was about. I went to work the next morning and finally got through to the GE who used the “c” word at the end of his first sentence. He had already booked me in to see a surgeon on the Thursday of that week. I lasted another hour at work before telling my boss that I had to go home “for personal reasons”. I drove straight home to “share” with my wife the small amount of information that had been disclosed by the GE. When I got home, my wife asked why I was home so early. I told her that we needed to sit down and have a chat. I then broke the news to her pretty much as I have described here - chronologically. Later that week we got told that the cancer appeared to be isolated to the gastro-oesophageal junction and that my condition was considered curable. Immediate family – We have 2 daughters in their early 30s. I waited until I had more information before disclosing to my daughters. I couldn’t get them together to let them know, but I used the same approach for both… “I have good news, and I have bad news. The good news is that my condition is considered curable; the bad news is that I have been diagnosed with stomach cancer.” No point beating around the bush, and get it out quickly so that it all sinks in together. Since then, I was keen for them to ask me questions which I would answer if I could or get back to them if I couldn’t Extended Family – Again, I pretty much just blurted it out – all over the phone given that we live so far apart. My main urgency in telling them was to alert them to the possibility of a susceptibility within the family – my second eldest brother had died from oesophageal cancer only a few years earlier Friends – Given that we live out of town, I did this via email. I started sending out quite detailed narrations of my journey; I referred to these as “Communiques”. One of these Communiques was dedicated to me answering questions that they sent to me. The rest of the world – I didn’t talk about it to the rest of the world until well after my total gastrectomy. I try to use any occasion to talk about what I have gone through with the “take-away” being to know yourself, know what is your personal “normal”, and do something about anything that is not normal before it gets to be too late. The other forum for me to spread the word has been this CCOC site. I'm keen to hear from you all. Hugs to everyone, Rick
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November 2019
1 Kudo
Hi @Glenys , How are you faring these days? Have you finally gotten your taste back or are you still craving the S&VC? I have moved on to a home-prepared trail mix of nuts, rice snacks, soy snacks and dried fruit. It helps to keep my weight up, but I am starting to get a bit 'over it'. And have you managed to get access to medicinal cannabis through your doctors? If so, is it working for you? If not, what is stopping you? I have been fortunate that I have never felt the need for this sort of alternative treatment. Please keep us informed on your 'journey'. Hugs, Rick
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November 2019
2 Kudos
I have been a tad busy of late with: * work * commuting (nearly 3 hours per day) * checking on our new babies (7 calves with 2 to go plus lambs) * spraying weeds (100 ac) * pulmonary emboli identified during oncology reviews * dealing with a despicable kidney stone * (stuff)... In case you didn’t guess, I’m very interested in this topic. Rick
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November 2019
2 Kudos
Another question... People in rural areas tend to just "get on with things" which generally means bottling up - ignoring symptoms and hiding their feelings. How do we encourage people, and particularly men, who live in rural areas to talk about, and seek early treatment for, symptoms of cancer? I would also be interested in seeing statistics about the proportion of men in rural areas who commit suicide after diagnosis of cancer. Hugs to all, Rick
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Hi @Glenno , It is refreshing and particularly surprising to find any surgeon who seems to have any sense of humour. Usually they are just so arrogant and full of their own importance. The friendliest doctor in my team was the oncologist - while he didn't joke too much himself, he was receptive to jokes from me. Surgeons need to lighten up - a LOT!!! Hugs, Rick
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November 2019
Hi @ladyfountaine, There are many sincerely friendly people here on this site. Let us know what specific help you need and I'm sure that you will get inundated with support. Rick
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November 2019
2 Kudos
A couple of questions... 1. Do you believe that there is a generational difference in the preparedness of men to get advice and/or treatment for symptoms that indicate that they may have cancer? That is are Baby Boomers generally presenting with more advanced stages of cancer than those born in the 60s and 70s and they more advanced than those born after in the 80s and 90s? 2. Do you believe that the prognosis (curable vs palliative treatment) influences a man's willingness to share his thoughts and feelings with others? Thanks, Rick
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November 2019
1 Kudo
What do you mean by 'safe'? Nothing that you do on the internet is entirely 'safe' - it relies on hosting sites and the participants 'doing the right thing'. Hence I don't use FaceBook or other similar facilities. What are you really wanting to do? If you want to send a message to another user on this forum without everybody getting to read it, you can send a personal message. If you really want to start or join a private chat-room with trusted friends, that is another thing altogether - search the internet. I still wouldn't consider these as entirely 'safe'. Regards, Rick
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