May 2010
Hi Everyone
Good advice from star shine as you can freak out with all the information available on the net. However, there is good information out there from reliable sources and that can be quite useful. How to distinguish between the rubbish and the good stuff? On the front page of the site, look for the "Health on the Net" logo. Organisations that use this have to have accreditation and conform to the code of practice. Their sites are checked for evidence based content, so along with the Health on the Net logo, there will be a date when it was last accredited.
A good example of this is the Lions Australia Prostate Cancer Site http://www.prostatehealth.org.au.
The Health on the Net code of conduct is at http://www.hon.ch/HONcode/Conduct.html
Cheers
Sailor
Never go into strange places on a falling tide without a pilot. Thomas Gibson Bowles
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April 2010
G'day Vinouche
So pleased that three good things have happened and that makes things better for you. Good to know that you have some new goals. I have told my oncologists that they have to keep me going long enough that my grandsons will remember their grandfather as someone who did things with them. Fishing, sailing, woodworking here we come!.
Cheers
Sailor
A sailor’s joys are as simple as a child’s. Bernard Moitessier
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April 2010
Hi Willow
So glad that you have rung the oncologist. It may be nothing and you will end up feeling like a fraud, but it is a fool who does not get such things investigated. As far as the fear goes - it may be worthwhile when you see your oncologist to have a talk with him about dealing with your feelings. As I have mentioned elsewhere on this site, I went though a period where I had panic attacks and was prescribed some medication that I took when the feelings hit me. I didn't need it much after that, just having it helped. He may also suggest some counseling, I can recommend it.
Cheers
Sailor
Never go into strange places on a falling tide without a pilot. Thomas Gibson Bowles
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April 2010
Hi CATS,
We have all had our metaphorical passport for the Kingdom of the Well taken away from us at the time of diagnosis, aka border control. We now have a passport for the Kingdom of the Ill! It is the only metaphorical passport we have at the moment.
So sorry to hear about your present situation and I am not going to try and gloss over anything. To me - and I am not medically qualified just another person with cancer - it doesn't sound real good. However, considering what you went in with all that time ago, it doesn't sound to bad either. Clearly they are not that worried that they want to do something immediately. Your are six weeks off chemo and have a scan in five and a half weeks - not tomorrow, not back on chemo immediately. Also you are off chemo which will give your body a chance to recover. So make the most of the next six weeks, don't be afraid to pamper yourself a bit, and do take care.
Best wishes
Sailor
She said, 'I'm home on shore leave,'
though in truth we were at sea
Procul Harum - A Whiter Shade of Pale
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April 2010
“Illness is the night side of life, a more onerous citizenship. Everyone who is born holds dual citizenship, in the kingdom of the well and the kingdom of the sick. Although we all prefer to use only the good passport, sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place” Susan Sontag, “Illness as Metaphor"
The metaphor of citizenship and passports used by Susan Sontag is a good one. When we identify ourselves as citizens of a country - we carry the passport of that country. It says that it is the place we call home - in the words of the Peter Allen song, now more familiar to those who travel using QANTAS “but no matter how far - or how wide I roam, I still call Australia home”, but it is more than that. When we identify ourselves as citizens of a country we are saying we accept the culture of the country, the language of the country, the way things are done, the myths, the legends, the origins of that place. It’s footy and cricket, meat pies, good coffee, Ned Kelly, Gallipoli, Australian English - all that amalgam that we accept as citizens of Australia. We are not citizens of the land of the well occasionally visiting the land of the ill, we are now citizens of that land. We may travel for a while in the land of the well, but it is on the passport of the Kingdom of the Sick.
BC we were citizens of the Kingdom of the Well. We may have occasionally travelled in the Kingdom of the Sick, but we were there on a visa. Our passports were stamped at border control with the expected length of time we would be there. Sometimes that stay was extended, but we always returned to the country of our citizenship. Then without much ceremony we were deported from the land of the well into the Kingdom of the Sick. At border control our first passports were taken from us and we were identified as citizens of that other place. From time to time we can visit the Kingdom of the Well and we can even reside there for long times, but we know that from now on that is not where we are citizens. We travel back to our country, we visit the town of Regular Checkup, and if it is a good visit we can travel back to the land of the well on a visa that says ‘next time’. If it is not a good visit we travel on to the town of More Tests, even to the city of Further Treatment and perhaps the shire of Rehabilitation.
AC our culture, language, myths and legends have changed. The people we meet and associate with are more likely to be fellow citizens and we lose contact with those in the other country. It is now where we belong.
Sailor
25/4/10
Home is the sailor, home from the sea,
And the hunter home from the hill. R L Stevenson
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April 2010
Hi Samex
Hope that you have managed the few days of school well and that the anti-d's have helped. I can recommend them. At the time I was first diagnosed with cancer I had quite a few other things happening as well and my GP put me on a low dose of anti-depressants for a while. For a while things got really heavy and I was having panic attacks so I used to carry round pills to take when I had a panic attack. It coincided with some of the heavy therapy I was having, plus a few other family issues. I didn't need them for long but they sure helped.
Cheers
Sailor
And when men lose confidence and trust in those who lead, order disintegrates into chaos and purposeful ships into uncontrollable derelicts. Wall Street Journal Editorial 1952
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April 2010
Gday Harker and Mopity
Harker got in ahead of me is suggesting you go to labtestsonline. If we are not allowed to mention such sites here then I think we have a major problems. As Harker says it is a community service, receives government funding and contains evidence based information. Look up your test and it will give you a wealth of information.
Cheers
Sailor
The acquisition of the knowledge of navigation has a strange effect on the minds of men. Jack O’ London
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April 2010
A number of people have been expressing their grief over death of loved ones or the imminent death of loved ones. I can empathise with them. My father died a long time ago, I was in my mid twenties at the time. I had known him as a father and was starting to know him as a friend and a grandfather. We were 16,000 km away at the time and in those days that was over thirty hours travelling and the fare for two of us to Australia was equivalent to six months wages, so we couldn’t even come home for the funeral. He died ten months after my son died. It is my son’s death rather than my father’s that has remained with me and can come back to the surface at unexpected times with just a chance remark from an unsuspecting person. My mother outlived my father by twenty-five years. Lived to see her grandchildren into adulthood, achieved her aim to be the longest living in the family and was ready to go. So there wasn’t a lot of sadness, but lots of good memories.
We live in an age where death has largely been banished from our lives. For most people the first experience of a family member dying is a grandparent when they are in late teens or early adult hood. A baby born today in Australia can expect to live into their eighties. The scourges of infectious disease, poor public health and little access to medical help have long gone. So we forget how common death was. In classical Rome, life expectancy at birth was twenty-eight years, in medieval Britain about thirty years and in the early twentieth century, depending in where you lived, 30 - 45 years. Prior to the industrial revolution in England, the percentage of children who died before age five was 74%. By 1830 that had improved to 32%. In Australia infant mortality in the hundred years from 1904 to 2004, as declined from 82 per 1000 live births to 5 per 1000 live births. Within our parents and grandparents’ lifetime the reality of death has largely been removed from our lives. So when we are confronted with our mortality with the diagnosis of cancer it is quite frightening, as we have had little else in our lives to remind us of this unfortunate reality.
We have also forgotten as a society how to lament - lament to express our own sorrow. It is very much not the done thing to acknowledge our own grief and sorrow. So we no longer have funerals, we have memorial or thanksgiving services. The coffin gets banished to a private family only service often quite removed in time from the other. Instead of saying how much the person has contributed and how much we will miss them, we tell jokes about the peccadilloes of their youth. Not exactly honouring their memory. We are supposed to be so positive all the time, even in our own grief and loss. Everybody commends us for being positive, we get rewarded for being positive, and like Pavlov’s trained dogs we respond accordingly and hide our real feelings.
Yet we do not have to live like this. Death is part of our living, even if only in the terms of the 1960’s graffiti in the London underground - “Life is a sexually induced terminal condition”. If we acknowledge that death, like taxes, is one of the great certainties of life, then we can get on with living. Making much more of the present, making much more of the time with family and friends and celebrating the sheer joy of our existence.
On my wall I have a quote - it is attributed to Tim Costello "There are times in life when we have to face the big questions, to look squarely into the face of death and then affirm the sheer gift of life"
Cheers
Sailor
12/4/10
I find the great thing in this world is not so much where we stand, as in what direction we are moving: To reach the port of heaven, we must sail sometimes with the wind and sometimes against it, -- but we must sail, and not drift, nor lie at anchor. Oliver Wendell Holmes, The autocrat at the Breakfast Table
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April 2010
Hi Jewel
Wow! What a lot to happen in such a short time, no wonder your head is spinning, you are confused and the normally distant in-laws suddenly realise that they may not have that taken-for-granted son around and they had better not take him for granted. Families are funny things. My son-in-law's father and he never seem to communicate. It is well over a year since they have spoken in the 'phone and his father didn't even have a telephone number for him as we found out when he range here after the Black Saturday bushfires to check that he was OK. They get on well, just don't see the need to communicate.
There has been some good tips in Jill and Katie's advice replies. Jill you are such a practical person you are an inspiration to muddlers like me. In particular, make sure that you look after yourself. Your husband is going to need a lot of looking after with a lot of life changing adjustments. Don;t be afraid to ask for professional help. See the social worker at your hospital, ask to see the dietitian and the OT as well. Make sure you find out what home help is available. A friend of mine who was a carer for her teenage daughter's cancer experience, once said that having someone come in for a few hours once a month to clean the house was heaven. Don't be afraid to get counselling for both you and your husband. Too many people leave this one too late. It is a time of transition for both of you and your children, and times of transition are emotionally uncomfortable.
Take care.
Sailor
On life's vast ocean diversely we sail,
Reason the card, but passion is the gale.
Alexander Pope, Essay on Man
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April 2010
Prefer saffron rice with the Osso Buco. I don't have a Le Creuset pot so I cheat and do it in the slow cooker. On the other hand, lamb shanks with garlic mash in mid winter! Nothing like Pea and Ham soup in mid winter either. This weekend it will be Boeuf Bourguignon to Don Dunstan's recipe - might do a garlic mash to go with that. Does anyone remember the Peter Sellers and Sophia Loren singing about Bangers and Mash?
Cheers
Sailor
Never go to sea without an onion – Bill Tilman
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