Hello All. Thanks for lending me your listening ears. I had non-hodgkins lymphoma at 12 years of age - treated with chemo and radiation to head and upper body. Recently nearly died from an enormous brain tumour, atypical meningioma, 35 years after radiation exposure. Had no idea that radiation treatment could result in secondary tumours. Studies report that 20% or more of paediatric patients confront secondary tumours at 30 years from cranial irradation. Also had skin cancers despite not being a sun seeker. Studies report a 40-fold increased risk for skin cancer for adult survivors of childhood cancer under the age of 35 years who were treated with radiation. Didn't know about this either. Anyone else out there that suffered through lymphoma or leukemia as a child and then had to experience brain tumours and/or skin cancers in adulthood? Were you ever informed of the high risk of secondary tumours/cancers over time? Have you been offered prolonged surveillance including brain imaging and skin examination? I hope that you have been provided the follow-up care you deserve after primary therapy. Unfortunately, I did not receive this care. Keen to hear about your experience. Claude
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.