My wife was diagnosed in early 2024 with at first thought was ovarian cancer. surgery within 7 days found it wasnt ovarian cancer but a rare appendix cancer with cancerous mucous theoughout the abdoman and alsp peritineal cancer, they removed the appendix and 2 kg of mucin and refererrd her to Professor Cherry Koh at Chris Obrien lifestyle hospital. another surgery after 5 rounds of chemo (which was not working) where they removed more mucin, and ended up with an illeostomy.  Moving forward a major surgery MOAS, PMP and Hipecc was scheduled for 7th November at the RPA as there are only two places in NSW that can perform this surgery and it has to done in a public hospital. 5 weeks before the planned surgery she ended up with what they first though was a blocked bowel and was admitted to the Mater hospital in Newcastle. After a week of trying to clear it they found that it was actually a twisted bowel and she was transferred bt ambulance to Chris Obrien Lifestyle for emergency surgery where they removed 1.8 mtrs of small bowel as it had died. 4 days later more surgery to reconnect the bowel and closr the abdomen toatal days in hospital 26 days. we are home now but she is very frail and is extremely fatigued and tired. Now she has to work on getting fit, put weight back on ready for the big op originally planned. I think she has ended up with PTDS as she in now very afraid of any procedure she has to have which concerns me looking forward to what is to come. We cant thank our surgeons and staff at Chris Obriens enough. Cancer council have offered lots of support and I would like to thank them also. Hoping that 2025 wil bring better health and wishing the same to all on this page, be it a patient or carer as we all have to be there for each other.  ... View more

My wive has just been diagnosed with Jelly belly cancer after a full hysterectomy, other organs and a 20cm tumor removal. they want her to get fit and go to a major hospital for a procedure called warm chemo which will hopefully extend her life by another 5 years but it sounds like a very big op which I’m really scared of for her. I’m hoping someone else might have gone through the same and can share their experience with me. She is a tough strong minded 60 yo woman and won’t give up. Me on the other hand am going through a roller coaster of emotions. Thank you ... View more