About sylph

sylph

Hi Kristella, I'm sorry to hear about your boyfriend's diagnosis. My Mum had the Whipple's procedure when she was first diagnosed with pancreatic cancer and I know it's difficult to see your loved one in so much pain and so weak. I'd encourage you to follow Sailor's advice, as well as to ask as many questions to the Oncologist. We always went in with a list on a notebook, and recorded the answers because some days we were too in shock to remember the small details later. (like changing chemo routines) It helped me to know exactly what was to happen to her. But, it's not for everybody as too much information can be frightening. *hugs* Keep us updated. You're not alone in this.

sylph

Thanks Sailor and Vera for your kind tips! Thankfully my mother has moved on from those fads and has started chemo with abraxane and gemza instead. And I'll pass on the tip about the nerve block too thank you. Pauline -- it's good to hear from somebody doing okay post-diagnosis of pancreatic cancer. Keep us all updated on how you are coping with it all! Julie - my mother just started the abraxane trial last thursday ... how is your friend going with it? Fingers crossed that this chemo helps 🙂

sylph

Hi Vera, My mother was diagnosed with localised pancreatic cancer in Jan 08. It's a bit of an up and down journey but somehow things seem to be working okay as she's still with us, albeit now with metastatic pancreatic cancer. One piece of advice when you research on pancreatic cancer: despite the percentages in survival and all the rest, if you are that 5%, then you've got 100% survival rate. TO LYNNE: Firstly, congratulations on your son's 1st birthday! That must have been very exciting for you both. Secondly, you mentioned that your husband just started on Paclitaxal. May I ask how that is going? My mother has been offered to start on Paclitaxal and gemsa, but she hasn't decided whether to continue with treatment or just enjoy her life. Thank you and all the best to you both!

sylph

Hi all, My mother has recently been diagnosed with metastatic pancreatic cancer, from her first diagnosis of localised pancreatic cancer in Jan 08. Since Jan 08, she's had whipple's resection and gemsa, then radiochemotherapy for local recurrence in Oct 09. Last month, the PET scan revealed mets to the liver and the peritoneum. I've found some support groups in NSW but unfortunately we are in Melbourne - does anybody know if there are any support groups for pancreatic cancer survivors in Melbourne? Also, she has severe back and abdominal pain from her mets - can anybody recommend any alternative treatments to relieve the pain? She uses a heat pack, analgesia and rests but still gets the pain. Lastly, the latest thing that has been recommended to her is Kanga water and the Hallelujuah Diet. Has anybody else tried it and are they just scams?! Thanks for any help you can provide! It's hard to see her suffering and to have the poor prognosis hover over her.

Re: Hi wife of pancreatic cancer patient

Re: Pancreatic Cancer Support

Re: Hi wife of pancreatic cancer patient

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