Best wishes to you and to your husband Jen. There are lots of supportive members int he community. We are here to listen so feel free to share anything you want to share during this difficult journey. ... View more

Best wishes to you and to your husband Jen. There are lots of supportive members int he community. We are here to listen so feel free to share anything you want to share during this difficult journey. ... View more

Hi Dee Dee, Would you mind sharing what your mom's experience was with gamma knife? My mom got diagnosed with a brain tumour but the doctors are only offering surgery. So I am investigating to see if there are other options and found information about gamma knife that indicates it can be a good option. ... View more

Hi All, Just wanted to give you a quick update. My brother has had 2 checks and they came well. One showed a small dark spot in the other testicle but it turned out to be a calcified mass so it was meant to be ok. Other than that he and his partner froze some sperm just in case as they want to try to have a baby in the next year or so. The chemo went well too. Only one session. Hope everyone is well. ... View more

Hi All, Just wanted to give you a quick update. My brother has had 2 checks and they came well. One showed a small dark spot in the other testicle but it turned out to be a calcified mass so it was meant to be ok. Other than that he and his partner froze some sperm just in case as they want to try to have a baby in the next year or so. The chemo went well too. Only one session. Hope everyone is well. ... View more

Hi All, Just wanted to give you a quick update. My brother has had 2 checks and they came well. One showed a small dark spot in the other testicle but it turned out to be a calcified mass so it was meant to be ok. Other than that he and his partner froze some sperm just in case as they want to try to have a baby in the next year or so. The chemo went well too. Only one session. Hope everyone is well. ... View more

Hi there, Me again. My brother was on morphine as well after the surgery. Another doctor's appointment today with pathology results. Doctor said it is confirmed that it was a Seminoma but a rather aggressive one. It was grade 1 (contained). He says that unless further chemo and/or radio therapies are added, chances of it returning are 40%. With appropriate treatment should go down to 1% Urologist will be meeting Oncologist on Friday to recommend best treatment and we are going back to see him next week. Just had a couple of questions: 1. If we were to move to public system, do we just tell the urologist or the oncologist and then they/he will send the results to where ever we go? 2. If we move to public, do we get to choose which public hospital we go to or would the doctor recommend a place? 3. Steve, what were your experiences with the type of additional treatment you had. Side effects, etc Thanks a lot again ... View more

Hi there, Just wanted to give an update. My brother had his surgery on Thursday. CT's came all clean and the tests for markers came also good (not sure what it means they came good but I imagine it might be that it is either a seminoma or that he could almost confirm that it is not a non-seminoma?) He still decided to do the whole thing through the private hospital. We have appointment on the 14th to talk about pathology results. Only thing is that my brother says he has been very sore. The doctor did not talk about taking any pain killer about the operation so my brother i going to give him a call tomorrow before taking anything even though it is really sore. I am not sure if the doctor is meant to give you pain killers from the beginning or if he is to expect a call from the patient? Anyway, I hope you are all well and thanks again for all the support. ... View more

Hi Steve, I fint it strange that they don't even mention public as an alternative. The first GP pretty much just send him straight to someone at at the private. The urologist was really nice though so everything is booked for the surgery next Thursday. They hav also confirmed the prosthesis was included. All up it is going at about $1,700 out of pocket expenses with the surgery costs included. What will happen if something else needs to be done? can you usually just moved onto the public system or how would you recommend ging about it if that is the case? We are getting the CT scans and tests for markers today. Thanks again, This is really helpful! ... View more