I am so sorry Rachelmarie. My husband (age 54) diagnosed with neuroendocrine tumours in liver & other places since April. 3 chemo rounds & the last 3 months in hospital. First 2 months in Cardiac Ward because of heart issue. Zero empathy towards his cancer & reducing condition. Significant ulcer developed on sacrum because of lack of movement. Moved to Oncology ward for 'quality of life/quality of death' with a room with no window & the smallest TV ever seen. Apparently Palliative care is full & Hospice also. I feel, apart from basic pain management, there has been zero empathy shown to him or my family & we are made to feel like we are a bother for asking. We organised our own TV & tried to make his room a happy place. No-one talks to me & his doctor on leave for 3 weeks & Palliative doctor has never spoken to me. As if my heart is not breaking enough, it is further blown apart by this feeling of being invisible. I hope you find support ... I don't know when or where ours will come from ... I am so exhausted.
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