Hi Karyn, I just realised your post is from 2016. How is your husband going. For your and my sake i’m hoping to hear he has had improvements and is still around. I   would be interested to hear more of your journey as we are just starting that Journey in 2025 ... View more

Hi Karyn, I just realised your post is from 2016. How is your husband going. For your and my sake i’m hoping to hear he has had improvements and is still around  would be interested to hear more of your journey as we are just starting that Joirney in 2025 ... View more

Hi , My husband has also recently been diagnosed with Myeloma. He is a relatively fit and healthy 63 year old. He was having routine blood tests where something odd showed up so the dr ordered more tests. He then referred us to a Haematologist. Scary stuff i was sure his results would be fine and he would have pre myeloma. But i was wrong. His results put him on the bad side, just. He currently has  no symptoms so they have basically told us it is now a waiting game. He has to get tested every 3 months to check his levels. The next haematologist app. is scheduled for the second week of June Where we find out whether his levels have stayed the same or increased. My emotions are all over the place. , I’m terrified and grateful he has no symptoms, but this waiting game is taking its toll already. I’m wishing for years of the waiting game with no symptoms. But at the same time checking test results every three months with baited breath sounds terrible. We didn’t tamely our Children, 25 and 27 until we had  the confimed diagnosis from the haematologist. We haven’t told anyone else as my husband although very social is also very private. That was hard for me initially as i really wanted to talk about the situation. But i decided that i wouldn’t tell my best friend as she might struggle to keep the secret.  So i started talking to a Psychologist. Being able to talk about it with someone neutral who doesn’t know him has helped a lot.  ... View more