Hi my name is Kerrie 👋 I have multiple myeloma, first diagnosed with MGUS in 2008 I was 48 & devastated! My Doc said to me “it will probably grumble along for years like smouldering but not quite “ I ended up with Non- Hodgkin Lymphoma, had treatment for that until 2013, now I’m free of that 🎉and the myeloma just grumbled along, ear infections omg they were the worst, & your teeth hurt, had to get ten of them out 5 at time, that was fun, sickness, fatigue, I would get weird stuff, like foot n mouth 🤷🏼♀️ my platelets survive at around 20-50 my neutrophils are constantly harassed my white cell counts are crappy you guys now the stuff I’m talking about ! I’m 17 years in, I’ve had a stem cell transplant, my immune system is the same age as my grandson 😁 which is pretty cool but also a hazard because he’s at school he gets everything ! This is the first time I have been in remission. my doctors words ‘ Nil Cancer detected’, for 17 months now this has been the case ! There is always a bonus, I wake up everyday! My story is to hopefully give someone some hope ! I had none! Now I live my life it’s getting harder I won’t lie but I turn 60 next year & to be here to celebrate that was my goal from very early on! Even tho I’m in remission I still have to have chemo every week to stay there but there’s hope ! It makes me sick 3 sometimes 4 days a week but there’s hope & the smile on the faces of my grandkids when they see me is priceless ! Honestly I don’t usually share, could be the steroids ( treatment day) In 17 years I have never met another person with multiple myeloma it would be nice😁 You can achieve what you want out of life, you just have to do it differently what works for you & you can live with it. Please feel free to get in contact 😁
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