Hi there I have been reading your posts Smiley and I am sending you as much strength as I can. My father passed away on 17th March this year. He was diagnosed in August ,10 (although his first symptoms showed in the December before). I won't pretend that you have an easy road ahead of you because it is going to be hard but you need to do what Thakar said and focus on the now and not tomorrow. I strongly recommend that you build a good relationship with the palliative care team as they were my saving Grace towards the end. I wish you and your family lots of happy memories along this journey. I must admit that I have replayed my dads last weeks over and over again and I am going to do some counciling to try to move past that. Although the palliative team were great I wasn't really prepared to see dads decline. Take care of yourself as well Mands ... View more

My dad passed away on the 17th march 2011. He was a fighter, a strong man right until he took his last breath. Dad was given three months to live 7months ago so he did good. His strength and positive attitude has inspired me and my three boys aged 9, 10 & 11. Dad died at home surrounded by familiarity and most importantly love. I didn't realise how hard that would be as death did not come easy for him (I think due to his stubborn nature!) but If I could go back I would do the same again. My dad was a good man, he faught bloody hard and I will miss him every day. I wish everyone of you all the love and support and strength for this journey that has been chosen for you. Remember, no regrets, life is short and do not underestimate the viscous nature of gbm and most importantly, of your love Mands ... View more

Ok, so this time has come. I hoped as we all do that I would never write this. My dad has got tired of fighting and is now asleep, waiting to leave this world. I wish him the peace he deserves. His daughter Mandy ... View more

Tanya I am so sorry for your loss. I, we all are here for you. Friday is going to be very hard for you. I will be thinking of you xxxx ... View more

That must be hard to deal with, are your family all supporting each other? I believe this is very hard on the people closest to the patient. Dad too developed a bad cough that kept him (and me) awake 24hrs and the doctor gave him antibiotics even though his chest was clear just incase. His cough has cleared now but he is now less interactive, if that's the right word. He doest talk unless we ask him something, he will sleep all day and night if I let him, and has no idea of the day or time. He wakes at ten pm and get dressed for the day. I guide him back to bed and he is fine with that. He no longer talks about going home. I think he knows now what is happening. It is a funny thing cos although I have had plenty of time to come to terms with this I still was totally shocked and devastated at sudden decline over the last couple of weeks. My thoughts are with you Tanya Love mands ... View more

I,m so sorry your dad has bee. In hospital. How is he going now? Sorry for not replying sooner, dad has not been good either. Thinking of you x ... View more

Wise words, thank you. It is hard not to think ahead but you are 100% right. Thank you. ... View more

Thaker I am so sorry about your husband. It must have been very hard for you. This really is a ruthless disease. My dad has since began to change again and i am certain the disease is progressing now. His short term memory is getting worse daily and he is having more of what he call anxiety attacks but are actually small seizures. He is on 3000mg of keppra a day already. He seems to be very unsettled and says he feels muzzy headed along with having daily headaches. He is also more unstable with his balance. I hate knowing what's happening and just waiting for it. How are you going Tanyag? Mands ... View more

Hi tanhag, you are around the same stage as me I suppose. Dad is going to start his second round of the 5days a month maintenance dose of tremador. I see his slow decline in health and ability but dispute his frustration he is relatively pain free with the exception of his headaches that are controlled by pain killers. My dad is only 61 and it is awful to see this happen to him I wish you the best of luck with your journey with your dad, hold on to every moment Mands ... View more

I am so sorry to hear of your daughter passing Andrea.I have three children and I can only hope that in ever have to feel the pain that you would have and would still be going through. You are so right, this is a very cruel condition and it is a blessing that the patients do not fully understand what is happening to them due to their memory loss. For us though it is avery hard to see. Dad had another MRI and it showed three more small tumors. He is not happy but is still in a state of denial which for him gives him a reason to fight this I guess. Thank you so much for taking the time to write to me. Your support is so much appreciated Mands ... View more