I know how difficult is it to find info about sarcomas that is Australian, then you have approx. 70 subtypes. Most info and forums are American. I'm 18 months into my journey with sarcoma (high grade soft tissue sarcoma - pleomorphic epithelioid myxiod giant cell) 2 tumors 4 surgeries followed by 6 week of radiation. We were told that Chemo is not affective for my type of sarcoma but I think is has good results with Ewings?? What path of treatment are you on. There's an American site, sarcomaalliance.org which is visited by people world wide (mostly American) discussing surgeries, treatments, side affects and results. Hope you are under the care of a sarcoma specialist to give you the info and answers needed, these's not many around.
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