June 2011
Hi Richard, Thanks for the reply.
I am also on Folfox4 and will start Avastin this week (not looking forward to an addition and potential new side effects).
Yes, I've just started and the past month has been in slow motion and felt like a year to be honest. I feel like I'm at the bottom of a huge and foggy mountain. Do you have any advice on how to best prepare for the ongoing chemo??
I really would love to go to a group that meets in person.. I think I need it at this point.
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June 2011
Hi Sailor, Thanks for your reply.
Yes, everyone telling me to be strong is so frustrating. I *am* strong and always have been and I have no choice at this point but to be strong.. otherwise I'd just be making things worse for myself, if I let it all defeat me.
Yeah, I think letting it all out helps. A few days after chemo I was not feeling good at all, between cramping and nausea and I just started yelling at myself and my body and insisting it stop hurting me!!! It felt good and who knows, maybe it helped? I've been soooo emotional, I don't usually cry so much, so yes crying is a good release too.
Nods... a day at a time is what's getting me through it all. And laughing. I am loving watching funny movies and Modern Family too. It's really making me laugh with my whole belly (even though I have to hold it in place at times!).
Thanks again Sailor 🙂
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June 2011
Hi Harker,
Thanks for your message.
Yeah a day at a time is what's getting me by. My main issues seem to be around digestion, managing that between operations and treatment and everything else is a struggle at times. And now the mental side of things is starting to creep up on me and thinking too much, not being able to sleep well some nights.
Haha Malcom is a good name. I'm yet to name my port... I was thinking Felicity, because she is one of my favourite fictional characters (American series) and her surname on the show is Porter 🙂 I wish mine made a noise in a way, that would at least make it somewhat comical! But didn't it get annoying?
Oh yes I spelt "Horhe" phonetically, it should be Jorge! Thanls for that correction. Now it looks more international and special haha. Sorry to say I didn't name after your man, but thanks for pointing me in his direction. I love discovering new things and he seems like a rather fascinating man.
Rel
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June 2011
Hi Maddie, thanks for your reply. Wow 22 is so young! It is a bit like a nightmare.
I'm not sure there will be any more surgery for me, at least that's what the doctors are saying. I don't know if that's a good thing or a bad thing at this point, as I'm still recovering from the first surgery.
I agree that the support network is so important! I feel so lucky I've had amazing people around to help me at this time. I just came back from living in London, so I'm happy I'm home so much now!
Thanks for your support and well wishes! :)
I have a port in my chest and it worked well first time round thankfully.
All the best to you and your man!
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May 2011
Hello! Life has been turned upside down, I'm sure mostly everyone here can appreciate that statement.
I'm 28 and have had no real health issues before, so my diagnosis has been the biggest shock of my life.
3 weeks ago I went into hospital with severe abdominal pain and was sent home diagnosed with IBS. 4 days later and not much relief the severe abdominal pain returned and I had to return to hospital. Turns out I had a ruptured bowel and when I was operated on a tumor was found in my large bowel. That was removed and further scans showed cancer spread in my stomach, liver and lungs. It's stage four bowel cancer and the doctors say it's incurable. I'm refusing to believe this and wish to prove them otherwise.
I think I'm still in shock. I've been very lucky to have such amazing family and friends supporting me, but would love to speak to others who also have been diagnosed.
I'm still recovering from the surgery (23 staples later) and contending with my stomar, which really frustrates me the most. It's such a pain and a constant reminder of what's happened. I decided to name it (Horhe), so that when I can finally remove it (wishful thinking) my friends and I are going to have a wake and a celebration :)
I started treatment/chemo yesterday and it wasn't as bad as I'd envisaged. I was most worried about the needle going into my chest/port, but the nurse used a numbing cream which meant there was no pain when the needle went in. Phew! Today I've been feeling really low in energy and disliking the little "device" filled with more chemo that I've had to keep attached to me for two days. I go back to hospital tomorrow to get it unplugged and this will happen every two weeks. After four treatments we're doing more scans to see whether the treatment is working or not...
I've been so many emotions. More sensitive than normal and I'm a pretty emotional person. I'm still confused about how this could have happened, I've been angry and mainly frustrated at being housebound and having to rely on other so much. I'm a pretty independent and social person, so this has been hard as well.
I came back from living in London in January, so in that regard I'm so happy I'm home with my family and friends around. It would have been horrible for this to happen away from home.
I really want to talk to others who have been diagnosed with cancer... I feel like I'm going a bit batty and everyone keeps telling me to be strong, which doesn't really help!
I'm trying to stay positive and take one day at a time, but struggling.
I'm finding meditation really helps and music too. I sing, and happy I still have the ability to do that!!
Hope this hasn't been too long an intro, but there's so much going on in my head that I could write a novel.
Hello and I look forward to connecting to the community 🙂
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