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neen

Hi Lynn, They have said i will be in Fri, Sat, Sun, and on Monday a scan will take place to see if i can head home from there. Once returning home they recommend that you sleep seperately, avoid contact and children are kept at a distance, which is a little difficult when they just want cuddles! So we are going to have our little one stay with Grand parents for a few days. :-( How are you feeling about it all? Neen xx

neen

Hi Lynne I have my treatment in 2 and a half weeks, it will be at the John Hunter in Newcastle. My surgery was done in Gosford hospital, how about you? Take care, and will definately keep you posted! Neen x

neen

Dear Riss654 Fingers crossed for you too! I had a bilateral kneck disection done at the same time as the thyroidectomy as the cancer has spread to lymph nodes. Which we thought was only on one side to start with and then found we needed to remove on both sides, upper and lower. I think if its similar, what makes it difficult is the high density of nerves and blood vessels in the area. My surgeon feels my operation went well as they removed extra swollen lymph nodes as precaution and we should be positive, but also said there is no for sure answer at this point. So i wait for the treatment and scan to see if it tells us more! think you are right about the radioactive iodine treatment being standard procedure. Can i ask where you are having the treatment done? Neen x

neen

Hi Riss654, My goodness, I must say even though i wish that neither of us ended up on this page, its been quite amazing for me reading your post. I was also diagnosed with thyroid cancer in september, after many other tests everywhere else trying to find out what was wrong with me! I also had my thyroid (and many Lymphnodes) removed in October, and am also awaiting radioactive iodine this month! (I will have mine exactly 2 weeks after you).... If you dont mind me asking, what is the other operation they are talking about? It's so hard when it's unsure whats happening in your body and what effects all of this treatment will have, and those moments of having to 'just be' as i say. How are you doing getting through the day? I wish you much luck, and will be thinking of you. Neen x

neen

Hi Manda, Firstly I'm sorry you have to be on this journey, you and your family all sound very brave, (even though you may not feel that way... I know when people tell me that i think..'not really...I'm just doing what needs to be done!') I don't know what its like to loose a parent to cancer, but my mum had cancer when i was about the same age you were. I'm now 32 and was diagnosed myself in September. It doesnt sound to me that you are a selfish person, this to me would mean that you would not be there to show your family (especially your Dad) the love and support that you are. Unfortunately it seems that not everyone, even those we love dearly, has the capacity to try to understand what this cancer world can be like or cope with it. But what you are doing (in my opinion) must be one of the hardest and most selfless things anyone could do. I don't know what i would do without my husband and Mum and am so grateful for everything they are doing. I hope you are able to enjoy your two weeks away, yep sometimes a break from eachother is needed, i can get that!! :-) Take care and best of wishes for your Dad, and all of your family. Neen x

neen

Hi Thankyou everyone for the lovely responses. I guess i don't have to tell you what a difference it makes to correspond with people that are more aware of whats going on. Interesting, tiring, tough , challenging, character building times!!! Hope you are all feeling as happy and healthy as posibble. Neen x

neen

Thankyou Harker, Your response has made a difference to me. I am very blessed to have so much love in my family, and my little one is amazing ( i know...im her mum cant help it hehe!) I am most definately very proud of her, this made me smile when i read it in your response, as she quite often asks "Are you very proud mummy?"..you used just the right words! Will most definately keep loving them, thats the easy bit in all of this! Hope you are keeping well Thanks again Neen

neen

Hi Lynnibear07 I hope that you are doing ok, and your christmas was enjoyed with the least stress possible. I was diagnosed on 3/9/11, i had my thyroid removed in october and am waiting for radioactive iodine treatment. Its alot to take on isnt it.....one day at a time..sometimes an hour at a time is easier. I noticed you are a young mum too, that can have its challenges when things are so crazy! I have a 2 1/2 year old, she certainly makes the days worth it though, she constantly amazes me! I'm sending all my wishes your way and hope that you and your family have many special moments to enjoy together this xmas/ new year. let me know how you go lots of luck neen

neen

Hi everyone! I am 32yrs old and have recently been diagnosed with Thyroid cancer. I had a complete thyroidectomy and neck disection as it had spread to lymph nodes. I will be going in for radioactive iodine treatment on Jan 27th. This has all been such a rollercoaster ride. After my surgery i seem to have been left with some damage to my right eye, at first we thought it may have been due to the swelling, and then perhaps nerve damage. (even Horners syndrome has been metioned). I just wandered if anyone else has had experience with this? Most days it does not phase me.....in comparison it is such a small thing...and other days when i see myself i still get a shock! What i'm having most trouble with is watching everyone around me and the affects this journey is having on them. i have a two and a half year old amazing daughter who seems to know a lot more than most would give her credit for........she said to me the other day 'I miss you mummy', and held my neck and said 'Did the doctor get it mummy?'....We also go through alot of band aids for her at the moment!!! She is what makes me get up every morning! (along with my wonderful husband) Any tips on how to help them through?? Thanks for the time, any replys would be much appreciated! xxx

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