Hi, My 38 year old husband has had 2 surgeries in the past 6 months to remove a grade 2 Astrocytoma from the front right side of the brain. This time he has been recommended for Radiotherapy which he will be starting soon, the treatment in itself has long term side effects but there doesn't appear to be much of a choice. Because of the low grade the tumar is not proven to be responsive to chemo, however it was very large (size of a tennis ball the first time) and it has come back so quickly that it is behaving more aggressive than expected so we were told that if we don't do radiotherapy now they expect that it will grow back in the next 12 months which could mean more surgery.
Unfortunately the prognosis that doctors give is not what we want to hear with two very young children and spent so much of my time thinking of the difficulties ahead of us. However I quickly came to the reaslisation that prognosis is based on averages and not everyone falls into the average. I also found a US support site where I found long term survivors with brain tumar, this gave me some hope:
http://csn.cancer.org/
Now I try to take each day as it comes and deal with what is happening now without looking too far into the future. This is hard sometimes and we are all human and it makes me angry that I can't plan for too much into the future because of the uncertainty but I just need to accept the things I have no power to change.
This is my third time supporting someone with cancer as both of my parents had cancer int he past 7 years and now my husband and it never gets easier. However, what it has taught me is that doctors are great at what they do but they cannot predict the future, always ask questions but be prepared that the answer you are given may not be the one you want to hear, always trust your gut instinct and enjoy what you can of the life you are given.
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