Dear Lizzie, Cancer is just horrible and I am so sad that you are going thru what you  are  having to go thru.  I don't have  the same cancer as you but mine is rare (anal) and so far  I haven't been able to track down any one with in the same situation in Australia.  I think having someone who knows exactly what you are going thru is priceless. The best I have been able to do is a web site called "rare cancer alliance" in the US and although not perfect it has been such a great help with the "what if's", the "why's" and the "what is going to happen next". I hope it helps and I am thinking of you.Best wishesSharon    ... View more