Hi everyone,
new here, just recently diagnosed with a Granulosa Cell Tumor, a fairly rare form of ovarian cancer. After having an on-going niggling pain from having my gall bladder removed, by GP ordered a CT scan that showed I had thickening of the uterine lining and an ovarian cyst. From there I went to Melbourne to a specialist - I am in Gippsland, about 2 hours from Melbourne.
After having a hysteroscopy and D & C, that came with complex endometrial hyperplasia with atypia and a TAH/BSO was suggested.
I had the surgery three weeks ago, so still a bit sore and sorry for myself and just feeling quite overwhelmed by it all. The cancer was Stage 1a and I should not need any further treatment. I realise that I am extremely fortunate that is was discovered, but so many questions. All the what "ifs" about if it did come back, dealing with having a hysterectomy etc etc.
I have done the whole "Dr Google thing", there is not a lot of readily available info on this type of cancer, other than if it is not caught early, it can be problematic to treat. Fingers crossed that I never have to go there,and that it never comes back, but how to deal with that thought??
As this all happened so quickly, I have really struggled to tell people, apart from immediate family and friends, who I am not really sure why, but I made them promise not to tell anyone. Two days before the surgery, I still had not told my husbands family. I did not want my husband to, as he had gone through supporting his Mum, while she had bowel cancer, eventually dying from it.Now three weeks post surgery a few people are asking what I have been up to?? I just find it so difficult to talk about. Have actually just responded "Oh not much" to a few people on the phone.Part of me just thinks put it up on your fb profile, just to get it over with, but that's not really me either, just dont know.
As I work for myself, with my own art/craft business, I dont have an employer that I have to explain things to, but just had to cancel lots of workshops etc. Still just trying to head my head around it all.
Anyway, that's me. Would be interested in how people have gone about telling friends/extended family. Is there anyone else here with Granulosa Cell Tumor? Regards
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