I have recently been diagnosed with a Sarcoma in my Iliac bone (pelvis). I am currently the only person attending the hospital with this kind of cancer.
It started with a pain in my back like sciatica, first doctor diagnosed sciatica and sent me home, second doctor sent me for a CT scan and it showed up on that.
I went from a pain in my back to not being able to walk or touch my right foot within a week.
I have had 5 rounds of chemo and I have 4 more days left of Radiation therapy! I have a scan on the 4th of Feb and my results on the 11th of Feb 2013.
I am just wondering is there anyone else out there with the same or similar cancer. So far after round 3 of chemo it had shrunk by 50% my next scan is Feb 4th. My husband was told if it didnt shrink that I had 2 years.
I could not walk for 3months I am getting around quite well on crutches. I was on every drug that they could give me to stop the pain including: Pregablin, Oxycontin, Oxynorm, Methadone, Morphine Patches and Ketemein (horse tranquiliser) and that is just the ones I can remmeber. It took the palative care team 3 weeks to get my pain under control.
I`d like to compare notes with anyone who has gone or is going through something similar.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.