Hello Lynne, I hope you are finding it a bit easier every day. You have been in my thoughts daily, and sorry it has taken a while to reply - I have been dealing with insurances and chemo and just feeling quite 'ordinary'. Thank you for your beautiful message. I am indeed on short doses of the dreaded dex (only for 4 days during the 3 week chemo cycle) but I have noticed and tried to temper any intolerance I have felt. Forewarned and all that so thanks for the heads up. We are coping now though Lynne - staying positive and moving forward, just coming to terms with it all and the changes. It has still only been a bit over 2 months I have been "in the know" about a problem and a month since we found out the severity - the whirlwind dust is only just settling. I send you all the love I can muster. Take care XXX ... View more

Hello Michelle, I'm caught up in that NET too. Mine originates in the large intestine but seems to have pretty much taken over my body top to bottom. I havent been given a specific prognosis as yet - was led to believe that chemo was the best course of action for it (not something my personal research has supported)and have had a vague - 70 - 80 percent chance the chemo will put it to sleep - something I am fast learning may have been a tad optimistic. Anyway, I just wanted to say good luck and I hope it works out for you. This is certainly a nasty business but II lament on a daily basis why couldn't I have been chosen by something a little less rare, a thought you probably share - I am feeling a bit like a test case for those that follow because it would seem at every turn the medicos are a bit stumped and clutching at straws here ... anyway, noo more whinging. Good Luck! Cheers - Tony F ... View more

Hi KJ, thanks for the message. Without my beautiful wife by my side I don't think I could cope with any of this ... Regards Tony F. ... View more

Hi Robyn, Thanks for your message - it is as hard or harder on those around us sometimes than it is on us. And you're right we are blessed to have such staunch partners to stand beside us in our battles. I hear the words "I am there if you need me, just call" many many times every week but there is only one I can truly trust to live up to those words ... Take Care Robyn - Regards Tony F ... View more

Hi Emily, thanks for your reply. Even at this early stage of my journey I can already see the helplessness in her eyes and the frustration of not being able to just do something to make it all better. The tiredness of not sleeping and worrying and still carrying on with life. She has to watch while I undergo this nastiness of chemo - even only after one treatment I can see it is going to really hit me as I am so tired nauseous grumpy plus I'm already losing my hair and she is going to have to cope with watching me deal with that and being unable to help me with it. And then she has to carry on living because the bills still come in. I love her to bits and I couldnt think of a better person to stand beside me but I lament the toll it will take on her and us and I know too that now I cant do anything about that either. As you put is the little c does suck BIGTIME ... Cheers - Tony F ... View more

Hi Dazza, mate, I so feel for you. I am in no way the same position as you are, a horrible situation for sure, but it is something I have thought about for my wife if the situation does arise. And it has only been weeks since your wife passed away and your focus has been your son and all that "administrative" stuff that goes with the passing of a loved one. You have not had anytime to yourself to grieve - you need to take that time now. Get away and think of her and all the good times and say goodbye. Good luck mate, you are in my thoughts. - see that counsellor if you can ... Tony F ... View more

Hi Rainbow, what an uplifting story. I hope you enjoy your touring of our beautiful country when it comes about later this year - Cheers! Tony F ... View more

Hi Wendy, your prognosis sounds great - congrats. I have not experienced what you are experiencing but I would be making sure that you doctor/s (everyone from your Oncologist to your GP) know in no uncertain terms that you are still in pain as I would think that 15 weeks is a long time to experience post op pain. I am no medical expert though, just a guy who relies on logic! Cheers - Tony F. ... View more

My thoughts are with you Lynne ... ... View more