Thanks for the quick reply and info Mikey, yesterday when I went to my Chemo Orientation day, I was given a Cansupport brochure and told about their services...This whole thing seems so surreal, today I feel blank like it's not happening to me, yet yesterday morning I felt terrified. I've got Chemo next week and expect the worse but I know that it's bound to be beyond my wildest expectations....
... View more
Hi everyone,After two months of deliberation between specialists, being told I an incorrect diagnosis of Testicular Cancer followed by " Pop the Champagne, it's not cancer" and a final 2 week stay in hospital, I now know that I have a rare form of Cancer called Leiomayosarcoma (LMS) , a soft tissue cancer.A large mass in my liver was detected on a routine ultrasound whilst looking for gallstones, a following CT scan showed another tumour in my Psoas muscle and later a PET scan revealed a number of "hot spots" in my hip, neck and lung.It certainly has been a shock to both my wife and I as I've been mostly asymptomatic up till now. I was diagnosed earlier this week and I'm starting 3 consecutive day Chemo next week.I've read all that I can about Cancer and Chemo in general and I have found a few American sites about LMS, I've even started corresponding with a fellow LMS sufferer who lives in the USA but I was wondering if anyone had information regarding this unusual type of Cancer here in Australia ?
... View more
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.