You should be able to have the physio come to you twice a week. My brother was diagnosed Jan '13 GBM 4 He was operated on and they told us it was very successful. My brother also has trouble with weakness in his left leg and left arm He doesn't seem confused though just tired and his balance is not good. Today we went and got his second lot of Chemo tablets. When he was diagnosed in Jan he was walking fine, now if I can grab a wheel chair for him I do. He can only walk a few steps before he gets too tired. I'm sorry I really don't know the solution. I do understand there is a lot of trying to balance chemo tablets and dex. My brother is also on a diuretic to get rid of the fluid retention.Left leg and left arm very swollen Take care hang in there ... View more

You are amazing thank you for sharing ... View more

Wow Min I am sorry it came back But great news this time around they got a 100% resection Surely he will recover from the radiation given time. It seems that we can not plan our lives. My brother has GBM grade 4 diagnosed last Feb '13 he is copying so far but does not have the support at home Argh ! I live 2 1/2 hrs drive from him and try to take him to his now monthly check ups, mri's etc Take care we all get scared its a roller coaster Di ... View more

Wow Min I am sorry it came back But great news this time around they got a 100% resection Surely he will recover from the radiation given time. It seems that we can not plan our lives. My brother has GBM grade 4 diagnosed last Feb '13 he is copying so far but does not have the support at home Argh ! I live 2 1/2 hrs drive from him and try to take him to his now monthly check ups, mri's etc Take care we all get scared its a roller coaster Di ... View more

Thanks Tezza I hope your wife and yourself are doing well Thank you for the info My brother has been seeing Dr Helen Wheeler and Dr Back He had his scan yesterday after the month off of radiation and chemo All good so far. He has started his chemo tablets today for five days Then after 4 weeks he is going to Gosford to Dr Mathew Wong for check up and more chemo tablets. I have noticed that he is now losing weight says he isn't hungry he does have weight to lose after being on the dex. Have you found the same with your wife ? My brothers memory has come back after the op he had to remove tumor, but he is week on his left side walks like he is a bit tipsee. Has your wife had any seizures ? I have been hearing about them and I worry about it happening to my brother ... View more

My brother was sent in to NSH last week and had a large Malignant tumour grade 4 taken out. The feed back he seems to be getting is good he is so positive where as I feel like I am float on a rough ocean. I have noticed he has trouble with short term memory loss and he is ravenously hungry,his left foot is giving him strange sensations also feels like everyone is staring at him when he goes into elevator or food hall. He is hoping to get out this Friday and go home to the Central coast He will need radiation and chemo I live in Gloucester. I just feel a bit frustrated trying to get all the information about his care. I am able to take him to NSH for treatments He seems to think he will be able to catch the train there and back on his own ... View more