Hi Garry, we have submitted all the paperwork several weeks ago and unfortunately at the time Colin was given his sickness certificate was the evening before being admitted to hospital from his seizure so the 17th feb he was then flown from Coffs Harbour to Sydney, and he was in hospital for 3 weeks all up. As you know they dont take that time into account so we got the ball rolling on centerlink on the 11th march when we got home. Col had used all his sick leave whilst in hospital and had just had his annual leave 2 weeks prior to his admittance, it just a difficult time and waiting seems to be forever sometimes. tara ... View more

Hi Jen, We had the onocology team speak with us whilst in hospital and they gave us the referal for our local onocologist. We then had to see our gp and try and find out an appt time, so our gp also sent referral to onocologist this lasts for 12 months vs referal from specialist only lasting 3 mths. We then had to make a few phone calls to really push the issue and were seen 4 days later. You just really have to keep pushing the issue and ringing the onocology department direct and see your local gp get them to send referal and keep on ringing. Col has been on chemo now for 2 weeks, he is going ok so far with the odd occasion of nausea and sickness, fatigue is probably the biggest thing so far. We are having more difficulty trying to get sickness allowance from centerlink financially things are getting tight right now and still no healthcare card, we have a 14yr old son and 16yr old daughter who are also finding it a bit difficult to understand the whole situation of what is happening to their dad, the social worker at the hospital has recommended they join canteen. Hope your partner gets the referral soon and things can start moving in the right direction for yous. Waiting is the hardest thing. Regards Tara and Colin ... View more

Hi Jen, my husband also has been diagnosed with grade 3 anaplastic glioma and had his tumor removed on the 1st of march 2013, after having several clonic tonic seizures, he is 39 fit and healthy. After the surgery they refered him to onocology team for PCV Chemo without the radiotherapy, he started his first round of chemo on 27th March 13. As my hubby also had 1p 19q co deletion it is positive for chemo treatment and the prognosis is alot better. We are on the Coffs Coast and have found onocology team to be very informative and they were very confident to go the PCV as there has been proven studies that this is the better option. There is quite a few websites out there to give you info and we had to do alot of research and also found this seem the better option. As far as prognosis we were told with both co deletions 13+ years. Tara and Colin ... View more