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Denacm
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since June 2013
November 2016
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Re: I am a new GBM caregiver

by in Diagnosis and treatment
June 2013
June 2013
Thank you for sharing your story. It seems to help me plan for what lie ahead for us. My husband seems to be gaining cognition and reasoning although he struggles with performing simply physical tasks. When he can't perform them it really puts him in a tail spin and he becomes almost childlike for a bit. I am hoping for the best and trying to plan for the worst. Thank you for your kind words. I will hold you and your family in my thoughts and prayers during this difficult time. Take care and I wish you peace. ... View more

Re: I am a new GBM caregiver

by in Diagnosis and treatment
June 2013
June 2013
Thanks so much for your response. It sounds like the same changes are happening with my husband. He is confused and obsesses over everything. Thank you for the insight into different treatments. Just wondering the age of your Dad and how long since diagnosis? ... View more

I am a new GBM caregiver

by in Diagnosis and treatment
June 2013
June 2013
I am new to this site. I landed here because my husband has been diagnosed with GBM. He has had a resection and is having radiation and taking Temodar at the present time. He is about half way through the treatments at this point. I wanted to hear others stories and share mine as it helps me to cope. Please share your stories so that I can prepare to care for him after this first step. He is doing great with the treatments, physically, but has some confusion each day and his short term memory is suffering. These can lead to agitation which can be hard to deal with sometimes. He is staying positive and active which I feels helps greatly. Please let me know what to expect next so that I can do by best with his care. Thank you and blessings to all! ... View more
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