Well, in May last year after having an enlarged inguinal node and headaches for a while which culminated in a small seizure, I was diagnosed with metastatic melanoma- unknown primary, after biopsy of the enlarged node. The CT showed two 3.5cm brain mets so we got up close and personal straight off.
I'm a 38 year old single mother to an adorbale girl who's now 4, so it was all a bit surreal. It's a lot more real now, especially after a double craniotomy, another craniotomy, chemo (unsuccessful) and 3 bouts of SRS thanks to the grand total of another 11 brain mets popping up since the original diagnosis :)
BUT, I'm still here, I'm still me, I'm still caring for my girl and I'm still enjoying my life immensely. And the here and now is all that matters. Yes, I may have melanoma... but it will never have me.
:)Keep sticking it to melanoma, I say.
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I was diagnosed with grade 4 melanoma in May this year, thanks to 2 golf ball tumour mets in my brain, and one in my groin. I have no known primary. I had no idea I even had Melanoma. I looked at the skin cancer forum, but frankly, I can't see that I have much in common with anyone there :)Groin mass removed, and have had no further trouble there. I had the 2 original brain tumours removed, but scans revealed another one. I went back up a month later to have Stereotactic Radiosurgery on the other one, and they found a second, so I had them both zapped.Next follow up showed another tumour which was treated with SRS, and 6 more residuals around the previous surgical sites which we aren't hitting with radiation at this stage. I started Fotemustine chemo this week.So... that's my story in a nutshell!
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.