Hi Sue,
Yes it's not that straight forward making such an important decision. I am making my decision tomorrow after seeing the oncologist. If I have the mutant type I figure I have three major choices.
Radiotherapy ( the oncologist indicated there was no medical or scientific evidence to say that this will work...this surprised me).
Interferon. Self injecting over a twelve month period
Clinical trials. He was a big advocate for this. Like you I am scared of getting the placebo and being put well behind the eightball whereas I could have been more proactive by taking one of the other choices. Have I lost valuable time by heading down this path.
When you read the side effects of a clinical trial ( nausea, vomiting, diarrhoea etc) so I'm thinking I'm going to know pretty soon if I'm not on the real thing.
Are you looking at the same scenario Sue.
Would love to keep in touch re your progress and to perhaps compare notes
Regards
David
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