About Kazza155

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Hi all, I've also been diagnosed with Follicular NHL. I'm in my early 40s (with no symptoms) and its been a shock to me to have Stage 3 cancer (I have lumps around every main organ and 20 or so in my neck and head area). I found out 6 months ago and was on watch and wait. I haven't used any of the Cancer Council's assistance so far but I need to as I'm struggling mentally. There are a few things that I'd love to understand about Follicular NHL and W&W: 1. Have you ever had your lumps disappear? My first lump I noticed and was the reason I got this diagnosis, has reduced so much it has disappeared (this is over a period of 6 months). My haematologist has said lumps increase and decrease, it doesn't particularly mean anything. 2. Has something assisted you in recovery/mentally? 3. Have you tried Keto and alternative therapy? Thanks guys and stay safe/healthy!

Juno888

Hi Kazza, I have just been diagnosed, July 1st. I am keeping as positive as I can be for myself but mainly for my kids. I can see how coming to terms with a diagnosis like this can play with your head. I am usually quite a tolerant and patient person but I have been really irritable lately and definately cannot be bothered with people who dont think before they talk. Not really taking anyones rubbish right now. I also have an underlying feeling that I may have to have extended treatment after my surgery. I always try to listen to my inuition it is usually accurate. However I can see that having cancer plays with your head so much that in the end your not sure what is real anymore. And the waiting... 28th July is appointment day I am using all my spiritual knowledge etc to keep myself focused and I want to say I admire your outlook. I am also finding it wierd sayng I have cancer. I mean I am saying it, I can hear myself say it, I know it's real and true but it is really a surreal feeling. It's like I'm in a void. I guess it is just that I am thinking I will wake up and it will go away but I know it wont. I guess once the surgery happens it will all change again. I wish you all the best for the next 6 months as you watch and wait. I hope it is positive for you. Thank you for sharing your thoughts and where your at right now. Take care. Kind regards, Juno.

Kazza155

Hi there, I'm hearing you. We do need to have a 'touch of the sads' sometimes. It's only natural and helps us to let out any emotions that are bottling up. 'Better out than in' as they say. I find that most people treat me as normal but there are a few who pat me on the arm, give me a sorrowful look and say 'how are you feeling, is everything ok'. I know they mean well but give me a break please don't act like that every time I see you. That's depressing in itself. 'Happiness is something we decide ourselves. There are a lot of reasons to be unhappy but we choose to be happy because it makes us feel alive'. Hope your scans went well. Take care

Kazza155

This is my first time using a blog. After six weeks of being poked and prodded I was finally diagnosed with Follicular Lymphoma on 19 December 2013. What a relief it was to finally receive a diagnosis, one which came totally out of the blue mind you and threw me and my family for six. They discovered an enlarged 3.5cm supraclavicular lymph node on the left side of my neck during a routine thyroid ultrasound. Further tests revealed an 'abundance' of mesenteric lymph nodes, para - aortic and on my bowel. Because the nodes in my abdomen are no larger than 10mm they are taking the 'watch and wait' approach with me for now. I thought I was ok with this but over the past few days have been feeling a little low. I feel that everything has to be normal but it's the last thing I think of before I go to sleep and the first think of think of when I wake in the morning. I have a very supportive husband and family but don't feel that I should be talking about it all the time. Hence my decision to write a blog and connect with others. My mother was diagnosed with Follicular Lymphoma in December 2010 and went into remission six months later. I know all about this type of cancer from her experience so up until now have been feeling very positive about the road ahead. To our shock my mother has relapsed and was told three days prior to my diagnosis that her lymphoma had returned. We are still waiting for the final result to tell us what type it is. Who would have guessed that both of us would be going through it together, especially since it's not hereditary. We share the same Oncologist (who treated mum for her first diagnosis) and who we have total faith in. Even after typing a few lines I feel like writing this blog is just what I needed to get things off my chest. No doubt with the 'watch and wait' approach i won't be making too many entries until the time comes that I need to start treatment, which I hope is a long way away. I have read a few entries from others and already feel positive that this site will give me encouragement and look forward to connecting with people. Thank you for sharing your stories xx

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