thanks Mikey, you're sweet. yep true re 08. I just have a good idea of the $$ behind the likes of pink ribbon and as PC is considered "rare" (it seems everyone knows someone who has had it though so I don't know what that actually means) despite it's poor long-term prospects for most sufferers (NB - not all, I have read lots of positive stories of survival) no-one really seems to own it or push the agenda. I know there is some ground swell in this area (I sat in on meetings late last year held at the Garvan with a host of reps incl The CC involved) but nothing concrete, quite frustrating but I guess these things take time just hope it's not years ...   ... View more

Hi ladies, just wondering if you guys managed to do anything for PC awareness month last year? I feel really, really strongly about the lack of awareness about this disease as if we had known more maybe Mum would still be with us today... hugh sigh.... Like other types of cancer that have made such fantastic inroads in terms of awareness and research it really needs to start from a fairly high level in order to really kick things off, I would have thought with the spate of high profile people getting or passing on from PC recently (think Pavarotti etc) there may have been some leverage but does not seem to be the case, it's frustrating but to make an awareness month really work we'd need buy in from the powers that be - that's not to say we can't all do something ourselves out there in our communities! I'll shut it now, I think I'm writing this mainly for myself anyway 🙂   ... View more

Hi Soozi Sorry to hear of your loss, I hope you are coping ok although it is early and I'm sure still very raw. It's been a year and a bit since I lost Mum and it's still tough but I do have good days. be kind to yourself. Tanya   ... View more