Hi Shaz, how have you been? How is your Dad travelling? Mums on a new trial at Epworth and it's stopped the growth of the tumor. But she's learned to live with the pain. It's hard to watch and be the only person she can talk to. ... View more

Hi Young Carer, I'd like to think I too am a young carer but I'm 42. Although in my Mum's eyes I may as well be 12. I want to be the good listener for you. How are you going at the moment? How do you vent or get away from all the misery? My Mum has terminal cancer (mesothelioma). They said she has 8 months to live 2 years ago. We planned everything for her death. And by we I mean Mum and I. My brother is useless (in complete denial). We have gone so far as to pick the outfit she will wear in the coffin. There are days she's so nice, and others when she's awful. But, as you can imagine, I bite my tongue and try to enjoy every moment I have with her. It's been a very long time I've been walking on egg shells. I am the Mum of 2 beautiful boys and have a young husband too. I live 40 minutes from Mum but see her almost 4 times a week and sleep over once a week too. Guilt is something that I have learned to live with on an hourly basis. If it weren't for my beautiful Palliative Care Grief Councillor I would be more of a mess than I am. But that's enough about me. Tell me about you. ... View more

I'm so very sorry. You will be in my prayers x ... View more

Hi, how are you going? How did the chemo go? Mum's tumor was slowed when she took Alimta and Cisplatin but after a few months it started to grow again. she is currently on a trial at Epworth which has stopped the growth of the tumor so we're happy (although it still knocks her around a bit). How are you feeling? I wanted to ask whether you experience night sweats? Mum is drenched every night and I wondered it that was related to Mesothelioma... We haven't made it to the group for a few months because chemo is always scheduled on that day :( Anyway, hope you're OK. ... View more

Thanks so much for your support E. I'm not a facebook person but I will call Rod to speak with people in similar situations. Its getting to a stage where we think perhaps the doctors are wrong. My Mum still feels fine (although I see a little change in her which could be because the doctors said she has 5 years at best to live). I'm scared she's gonna get bad (real bad) fast and that's why I'd love to speak to other Meso carers to see if their loved ones are / or were so good too. The doctors keep saying it's definitly Meso. At night Mum says she feels pain and crunching in her chest but during the day shes good. I guess I can thank god for the times she good but I fear that around teh corner it wont be so easy. We are having another scan in 2 weeks and if we're lucky teh docs will say opps, there's no meso there, or it's possibly shrank??? Who knows. I'm just thinking I'm so lucky she's good today. ... View more

OMG I feel horrible for you. I'm so sorry that you and your Mum experienced that. I wish there were words I could say to help. ... View more

Thank you for your reply. Mum found comfort knowing that John is still well. I'm having difficulty finding Meso support groups in Melbourne. The group in Gippsland (Vicki from GARDS) have been very helpful but I wish there was a group in Melbourne I could go to. Has anyone heard of a Mesolthelioma support group in Melbourne??? ... View more

Mum also wants to know what people think about what she's been told. She was told not to worry about having chemo because she feels good. She has been told to get chemo when she starts to feel awful. But if she gets chemo now, wont that prolong her life? ... View more