HI Greg
I am so sorry to hear you have to go through this journey. I wish you all the best during this horrible time. My advice is to question everything. Everything the Doctor's say, question and investigate. The internet is an amazing place to go for information. Take control of your own journey, don't let them bully you, because you know yourself and your body best, not them. They are often not right. Taking control makes you feel less like a victim. There are many treatment options to explore, but to me the secret was to make sure I was as informed as possible, and asked as many questions as possible. Doctor's don't like us questioning them as they think they are little gods. Take no notice. You are the one in charge. It is your life. Often doctor's concentrate so hard of the physical aspects, they forget the Mind and Soul that you refer to and believe me, they will contribute to your success in this battle equally if not more than the physical.
Stay strong and I will be happy to be here for you if it all gets too hard.
Big Hugs
Carmel
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