Hi,   I had base of the tongue cancer T4 N2 M0. I had chemo and radiotherapy which was combined with monoclonal therapy and am still around 8 years later. Yes, I do live with many side effects but on the upside I am still upright every day!    Find out what your options are and then maske a choice. Don't be afraid to ask questions. ... View more

Hi Kieran   I also had tongue cancer and took me a while to get over the fatigue issues.  You might want to get them to check out your thyroid function as that can get affected by any radiotherapy if you had that.   Hope you are feeling a bit better   Julie   ... View more

Hi Len   I am 6 years post treatment.  I had chemotherapy for 3 months and then 39 hits of radiation combined with cetuximab.  So far so good, but of course live with all the side effects such as dry mouth etc... ... View more

Hiya   I am from Bunbury also and same/simlar cancer.  There are some clinical trials being done with Keytruda and they are getting great results.  A woman that I met via a cancer group in Melbourne has had a recurrence and recently received more chemo and Keytruda.  I understand how you are balkung at some of the treatment on offer as it is just so invasive with this type of cancer.   Jules ... View more

Hi Simon I had both a nasal gastric tube and peg. The peg was much easier and quicker to use pluw not visible to everyone. I actually had mine before treatment as my tumour was preventing me from swallowing. I managed to eat all through treatment, but this is not alwayw the norm. Foods that I found easy to eat were eggs, tinned peaches and tinned spqghetti - pretty bland I suppose but it got me through. All the best Julie ... View more

Hi Maggie I think everyone feels isolated after they finish treatment. Life has often changed dramatically and with it so do we. Then we find ourselves having to get used to "new normals", which eventually bec9me normal. Not always easy to go through and I found I needed to mourn the loss of my old normal before I could move on. Julie x ... View more

Great news for you kj ... gives hope to others also xx ... View more

Hi Carol IT's a tough treatment to go through and food does taste weird after treatment. Has your husband seen a dietician lately? I know they hounded me through treatment re not losing too much weight. Your husband also might be suffering from depression as that happens a lot to people after treatment. All of this is worrying and tough on you xx ... View more

Hi Win I just did a very quick search and according to the page I landed on, palliative care is covered by Medicare and also private health insurance. Are you in contact with a social worker or cancer nurse? They can be amazing in providing information and helping access resources. With a young family and ill husband I am sure any help you can get would be appreciated. All the best Julie ... View more

Hi Jen Fingers crossed you get good results from the treatment. The treatment can be quite tough and it is important to keep in touch with the cancer nurses and doctors to help combat any side effects your partner may be affected by. Not everyone gets bad side effects and I certainly didn't. Although I did have a feeding tube which was necessary in the beginning due to my tumour blocking my throat. There are many medications to assist with any nausea that may be experienced from chemo. I wont go into any more detail for now but please don't hesitate to pm me if you need any info and I will do my best to help or at least try and head you in the right direction. One day at a time is a good thing and sometimes it is necessary to break it down even more. Julie ... View more