Hi Jodii, I’m really sorry to hear about Erik's situation. Managing pain with Tramadol, Lyrica, and Panadeine Forte can indeed be challenging, especially with the added stress of Chondrosarcoma. Stuttering can sometimes be a side effect of medications like Tramadol and Lyrica, though it's not a common one. Both drugs affect the central nervous system, and while stuttering isn't a widely reported side effect, it could potentially be linked to how these medications are interacting with Erik's system. It might be helpful to keep a detailed record of when the stuttering occurs and share this information with Erik's healthcare provider. They might suggest adjusting the dosages or trying alternative medications to see if it alleviates the stuttering. In the meantime, it’s important to ensure that Erik's pain is managed effectively while monitoring for any other side effects. You’re doing a great job supporting him, and I hope you find a solution that helps alleviate both the pain and the side effects. Sending you both strength and best wishes!     ... View more

Hi Eliza, I see your post re:Gumbi Gumbi, it’s been a few years now. How are you doing? I am looking for something to treat my moms aggressive cancer ... View more

Thanks for sharing your story.  I'm really glad to hear you and your wife didn't let this steal your joy on your wedding day.  I'm still waiting to have surgery on Wednesday to find out what I have. Like you my lump just showed up.  I feel completely fine. My lump is in my armpit. I just happened to messaging my shoulder because of pain I was having. I  tore my rotator cup last year and it started hurting  Saw my doctor a couple days later.  Kinda a two in one visit.  They have done 2 ultrasounds and a CT scan. Surgery to remove and do a biopsy is this Wednesday. With can't come soon enough.  Congratulations on finding true love.  It makes a difference having someone on your side.  I'm blessed to have a great wife and family  ... View more

Hi DJ, your post and in particular many of the replies brings many upsetting feelings to the surface for me. Although I'm not technically a survivor, everyday I wake-up I remind myself that I have survived another 24 hours. I no longer disclose my medical state nor any detailed personal history. Past relationship experiences have clipped my openness and honesty and I dump all obvious symptoms on my increasing age. Actually I look quite normal, whatever that is. Attempting to rekindle relationships with old  buddies has been surprising and in a few cases really shocking. Some simply dont wont to go anywhere near a discussion and others already have their opinions. Seems that some even have more knowledge about me than I do. My general attitude is if you dont wanna friend me because I'm sick then your're not worthy of my friendship anyway.  I hope everyone here is doing ok today and survive another day. My LOVE to you all. ... View more

I have no idea, I never had any symptoms that were noticeable prior to the cancer diagnosis. I only found out that the cancer was in my tonsils after a PET scan when a secondary cancer was found in a lump on my neck. Sorry if this is of no use ... View more

Dearest Steve... I also had no support during chemo and after. I've lost nearly all my friends. Not one has asked how I am and how I'm doing. Not only did my friends desert me my parents also did. Kicked me out of the apartment they had for me while going through chemo...they said I complained to much and  shunned me even more for taking pain pills. I had become a junkie to them. Why can people not understand this horrible disease? I am 6 months out of chemo and still feel i haven't gotten a clear answer if is gone. every time i went to dr. It was everything looks great only to go into the hospital for SOB and be told there were three lymph nodes they were still looking at. My symptoms have started again. I feel abandoned from every corner. Dealing with cancer i thought would be the worst..no..now i have neuropathy and absolutley miserable. I'm scared and fed up that i may never get back to normal.  ... View more

deejjay I can understand having just gone thru cancer myself and talking to my doctor having this illness has really changed my life and he agreed that it does. I look at it are some so called friendship really worth it. You really need supportive people around although some people can start being supportive they change and I think that is the time we need to change as I have recently. See my comments above I seem to being going thru the same thing like you are. ... View more

Hi Jules2, I'm new here & am 8wks post pelvic chemoradiotherapy treatment for T4 anal cancer. Am still doing small dressings on a few stubborn spots in my 'crevices' & applying pure sorbelline cream to the newly healed skin as this is all I've been 'prescribed' by the radiotherapy nurses. I am intrigued to know whether you used the Manuka honey throughout your entire treatment & recovery, & if you used anything else like MooGoo? Thanks. 🙂 ... View more

Hey Hey   In my opinion, this is one for the scientists, and whoever offers a point of view on it does not definitively KNOW.   Immunology is a major research area in cancer treatment, and is providing improved (and less damaging) treatment options for some types of cancer.  Great.   But that doesn't necessarily translate to immunity/metabolism preventing you from getting cancer in the first place.   From what I read, there's some kind of programmed death gene in all of us, some kind of marker that tells the body to start shutting down.  It's like that old saw about every cell in our body replacing itself over a 7 year period .. we're designed to rebuild and heal, but also eventually shut down.   Cancer is a mutation of healthy cells, that (just from a bit of reading) apparently is triggered by this programmed death process - and a lot of the immunology drugs geared toward treating cancer are designed toward over-riding this process (so that your healthy immune system can identify and fight the cancer).   Look, this is all just me as a layman interpreting science that is over my head .... BUT ....   That leads to the logical extrapolation that a healthy immune system doesn't necessarily specifically fight cancer.  The immunology meds are about MAKING THE CANCER VISIBLE to your immune system (and yeah I think also super charging the immune system).   So basically, this programmed death process, this mutation into cancer cells, is triggered (in my case apparently by HPV+), and it's a signal from the head honcho that it's time to pull the switches and go on vacation.   In my thinking, it leads that an otherwise healthy person with a supercharged immune system is just at risk of cancer as someone not (an oncologist said this to me, actually, when I was diagnosed).   BUT - eating all that healthy stuff and being healthy still FEELS great.   I just think anybody who asserts that they KNOW it will help you prevent cancer should be looked at suspiciously - likewise if they even assert it will help you FIGHT cancer (beyond how being and feeling healthier will help you).   I think it's all about that programmed death process, that trigger point where a cell starts thinking "ohh right, Im not meant to be here any more".  They kill those cells with radiation and hopefully they stay away.  But will immuno- medicine, hawaiian seaweed and all that stuff help ?   I guess the answer is probably a very definite maybe.   Our medical establishment isn't great in terms of being a source of knowledge - I've met with scientists to discuss things like autism, and for extremely intelligent people with a very rigorous protocol, they're like everyone else - flawed humans who don't like hearing that they don't know everything, or hearing viewpoints alternative to the narrative they've invested so much into.   So yeah - on the flipside, if the secret to preventing cancer is in some kind of SUPERIMMUNO stuff, the orthodox medical establishment probably will poo-poo it for as long as possible, until the evidence is just plain undeniable.   I reckon gene therapy is probably what we'll see in 25 years - where at risk persons are identified at birth and given a preventative innoculation of sorts.  As long as the zombie apocalypse doesn't happen in the interim. ... View more

Lampwork54 You are so right in saying we can’t change what has happened,I find I no longer take things for granted,I enjoy life and all it’s uncertainty ,I like seeing my family take on new challenges and their growth along the way.Its great you are going back to Tai Chi and other outings you have to participate in life.Best wishes with your Radiation treatment. ... View more