November 2022
Hi all, having performed a few searches like 'hepatoma' and 'liver cancer' and received no hits from personal posts thought I might just ask. Are there any members in the forums that are being treated for hepatoma and the associated issues? May you all be having a calm and pleasant day. Thanks
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- Tags:
- hepatoma
- Liver cancer
November 2022
Hi Puffball, thanks for posting your story. Yes, I'm often moved by stories I read here, yours too, yours very much so. I click thru the posts chronologically as there seems to be nobody else here with hepatoma and associated issues. It seems to be an unpopular type. My love and hope to you and your girl. My definition of hope and optimism were previously confused, now i'm very clear as my optimism is slowly fading and my heart is full of hope for my self and for all the wonderful people who share their stories here.
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May 2022
Hello, Im sorry to hear about your situation and of course your husbands. You wrote in March so I'm wondering if anything has changed. Relating my own case might be helpful. My treatment had begun which included a slew of medication, some of it toxic and I became concerned and shocked that it was in fact true that I had Cancer. The reality hit home. My memory was affected and thinking became problematic and slow. I had a confrontation with a neighbour, very unpleasant. He was a new tenant and playing music between 2am and 3 am. My attitude was really shocking to me and I guess my neighbour also. Even more dumb was that it was the wrong neighbour. Needless to say I apologised but I was bothered by my action and doubled down on my patience and tolerence. Being affected by weird meds and knowing I really did have the big C with a limited time left isn't really an excuse. Im learning to live with this now. Its my sincere hope your situation is better. Peace is a much better way to cope. Sj
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March 2022
1 Kudo
Hello All, It’s been a long road to where I am now, about 20 years. Moving slowly thru each and every stage in perfect text book style. In 1991 I was diagnosed with HCV (Hepatitis C) Little was known about the virus then, perhaps the only certainty was that it was incurable and would most likely progress to cirrhosis and eventually hepatoma. About 15 years later a medicated treatment made its way to Australia and the government of the day made a brilliant financial move to put the medication on the free list. The interferon and Ribavirin cocktail self-administered by injection. The physical side effects were almost intolerable not to mention the emotional and mental impact. I resigned from my job and my boss hunted me down to find out why I had left a high paying job and successful career. If he behaved the same these days he would probably be arrested. Anyway, the point being that the overall effect was my wife and family almost didn't recognise me from what they had known me as prior to medication. Unfortunately, the overall outcome was 'No sustained response' and irreparable impact on my family. Fast forward another 6 - 7 years and I suffered 2 serious events which are unpleasant enough not to mention here. A very skilled surgeon arguably saved my life performing 18 gastroscopes repeatedly tying off oesophageal varices caused by cirrhosis and portal hypertension, narrowing of the portal vein restricting blood flow thru my liver. Somewhere along that time line tumours began to appear. If there was a positive to be found it was the perfect location on the outside of the bottom lobe. A resection fixed that and recovery was bearable. Clearly this was a high point until the little lumpy bumpies started to appear inside. At this stage I'm midway along the roller-coaster. Medication trial and error, wife and kids have long gone and needless to say the central point of the 'roller-coaster function'. Now 2022 I reckon I should be granted an honorary degree in CT and MRI radiology. 1 x chemical ablation and 3 x TACE procedures with nasty cytotoxic chemo. So, the purpose of writing this timeline has been to step out of the shadow. Up until the most recent results of an MRI even now as I write I'm feeling like I've beaten the buggar. Reasonably high energy levels, even without the short afternoon nap. Extending myself with exercise without any serious weakening effect, good sleep. Needless to say, I was a bit surprised when my specialist requested an appointment. It was a dead giveaway when I'd had an appointment 3 weeks earlier. After almost 5 years of consultations, I know her personality, she doesn’t like relating bad news. What an awesome doctor, all of them are so incredible. From the admissions staff to the recovery room and the ward nurses. I'm incredibly lucky. Funny thing is they always seem to place me in a ward where there are people that carrying a much heavier load than me. I'll be very surprised if anyone made it all the way thru this rambling waffle, if so, I do hope that you're as lucky as I have been. Thanks for reading. Stirling
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January 2022
Hi Susie, thanks for posting. Yes, all your feelings are indeed valid and seem totally appropriate to me. Sorry to hear about your sister. AML is indeed nasty. There are times when I feel very upset and really dont know my next step, seems anything I want to do just isnt worth it, why bother. Thankfully this doesn't last long. Recently I caught a reflection of myself and realised how sick I look reality was about to drag me down until I walked into the sunshine and saw the huge river and heard all the birds sqwarking and singing, nature has such a positive effect with me. There's no doubt your sister needs your love now, use your time, just being with her is valuable. Its my belief that conversation doesnt need to be too deep, about the past, the things your sorry about or anything too serious. Simply being with her at a difficult time will help you both feel ok.
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December 2021
1 Kudo
Hi again there are these sites that Ive included below. There are site that are even more specific in terms of health/gender and other personal prefferences. BTW i'm not associated in any way with any of these or in fact any similar sites. Also, Im not sure how the mediators of this portal deals with links of any kind. So this post may not appear or links may be filtered. Take care and good luck. https://au.disabledmate.com/ https://www.disableddatingaustralia.com/ https://www.disabledmatchmaking.com/ https://www.disabledsingles.com.au/
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December 2021
Hi. Yes. We do descriminate, all the time. There are sites specifically for age, gender, ethnic origin, birth location and yes our skin color. Sj
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December 2021
Hi Pgrant, I accessed that site some time back, however, I didnt actually attempt to date/communicate with anyone. The link is still active which I will provide below. If you still have trouble I will venture a little deeper and take a closer look. While looking for any specific cancer survivors or cancer patients friendly sites I recall finding some other sites that were specific to health or special cases. Of course I suggest exercising care when accessing any of these dating sites. Great to hear your treatments is going well. Regards, SJ https://www.cancersurvivordating.com/
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November 2021
1 Kudo
Very clever. However Spanish probably isn't understood by the sensor live nor artificial. So you could say whatever you like and not be sensored. Moderated might be a better term. Anyway, you are loud and clear and you should be able to say whatever you like. I attempted to have some comments deleted, that could'nt be done. Buenos dias.
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