Iyana271   I think you may have got the post mixed up it is not me having the pain but Andrea0613.  You need to go into her post directly and comment to her.     ... View more

Colin 81 if you had Rixtumab so frequently in 2005 people like you and Bushwalker had bad reactions so that probably why they space mine out to once every 3 months.    I must say when I was going thru RCHOP the Rixtumab was marvellous stuff it was really helping my immune system out I hardly got any side effects (or very little) and when I got to my 5th chemo my white blood count was down( but my hair starting to grow back too which was surprising) the next treatment it was back up there again.    Colin have been in remission since 2005.  ... View more

Dear Bushwalker.  Thanks for your advice.  So sorry you have so many problems with your treatment.   Dealing with this illness can be quite exhausting some times.  But overall I am trying to stay positive and get on with my life. ... View more

Bushwalker   How often did you had your immunotherapy sounds like it is more often then me.  I have one every 3 months my next one is 14th May.  When I had my final petscan it highlighted in an area in my chest which the doctor said he didnt think it would be another lymphoma but like a chest infection .  Like  you I had a cough which hurt everytime.  Went to doctors got a CT scan done on the Friday but by the following Tuesday if should nothing highlighted they couldnt see anything.  I still have a cough by only occasionally.   Bushwalker did you have lymphoma. ... View more

Colin81   Thats fine with me that your answer questions about Lymphoma I am glad there is some else like me on this website.   Hope everything OK with you and your help generally.     ... View more

thanks Colin I am glad you have answered Andrea, I too have had lymphoma but now in remission.  If you need any other advice I am here for you as well.  The points covered about having a support person is very important.  I do agree with you Andrea about getting a second opinion if you are not happy.   Yes with lymphoma you dont often get symptoms but please try not to worry.   ... View more

Lindsay this friend I was talking about before has called around to my place last night we spoke at the door she enquired whether I was Ok going out to get groceries as she rang the other day as well she is also concerned that I have not contacted her and wants to keep in touch. I did not give her an answer to this, anyway with this self isolation all I have wanted to do is sleep ... View more

Hi Mini-meme   Can I just say to you do not go into Google and ask for any medical advice that only worries you and often the advice is not true.  Only go onto site Cancer Council sites of actual medical websites.   At the beginning of my journey with lymphoma I went into Google who mentioned that my lymphoma deadly and there is no hope.  That automatically scared me and made my anxiety levels go up which doesnt help.   I later learnt there are marvellous cures for all cancers now as there are wonderful medical people finding out new things all the time.  Please keep positive as I strongly believe keeping the mind positive will make your whole body positive because this has been proven for my journey.     ... View more

Yes Iyana I am on rixtuximab injection every three months.  My 1st one was on 14th February.  Some days I get rather tired but that is one of the side effects.  My next one is 14th May.  I did have follicular lymphoma.   Iyana I just take each day as it comes and if I think about anything and it is not urgent I write it down to discuss with my cancer doctor next time I see him, or I ring him if it is urgent.  This treatment goes for 2 years.     ... View more