June 2021
3 Kudos
I haven't posted here for some time but with dealing with COVID lockdown here in Melbourne for the 4th time in about 18 months, I feel it is starting to impact on my mental health. I live by myself and find it really hard to deal with not having family support and very limited network of really good friends it does take its toll. There was one person I did ring and try and make a conversation who said to me that she didn't really need to have people ringing her as she had family. Another person insisted on wanting to come to my place when there was restrictions of not travelling more than 5kms if a person did this the police could be called in and a fine issued. Of course I got more upset with people persisting like this made me have anxiety problems. Although I started my treatment for lymphoma in August 2019 and now nearly at the end of my treatment it makes you tired as well as depressed. I am glad I am well now in the way I can do more things now that before. The loneliness and the isolation can be very hard, to the stage of me going for walks to get a cup of coffee and be able to sit in a local park and just watch other people does help sometimes. But overall I believe unless people have gone thru cancer at all in their lives they just don't understand sometimes what us cancer warriors go thru. I am not the type of person that will say why me or its not fair I got this cancer but would like to know from others how they deal with their low periods.
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January 2021
Thank you so much for your advice I really appreciate it. What I have just started to use the local exercise facilities in my local park and wondered whether you think I could do a bit of this I have been careful not to do too much and will try with this exercise twice a week with the combination of walking. The exercise is one machine is swinging my legs backward and forward plus using my arms I did about 10 of these and the other machine had swings your legs side by side and the last one is twisting around my waist area. I was a little sore when I got home last night but this morning my legs feel really strong. Hopefully if I can get my legs stronger I maybe able to walk for longer than 30 minutes. What do you think.
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January 2021
1 Kudo
I would like to know how people dealing with themselves when they suddenly gets quite irritable with other people. I am currently going thru maintenance treatment for my lymphoma. I am usually a fun loving person with an happy positive attitude to things but apparently over Christmas and the New Year I have suddenly become quite irritable with people I don't even know and I now feel I am very conscious of what I accept from people and what I don't. I went out on Christmas Day and was quite irritable and argumentive about something and wish it had not happened. I am now making sure I have plenty to sleep and not to get myself exhausted because I think that what starts it up and whether this is because of the cancer treatment as well. What do other people think and has this happened to you.
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December 2020
Thank you so much for your words of wisdom CaptainAustrali after discussing this matter with me I have noticed after my 30 minute walk today my legs don't ache as much or the pain is not as severe. I will certainly do what you said and try and now make a goal of walking 45 minutes a day and try and extend this. Thanks again you have really helped me and spurred me on to do my best and lose this 20kgs I know that will take me a long time but it is all worth it for my health. I do hope you are going well with your treatment as well and all the best for Christmas and the new year 2021
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December 2020
1 Kudo
I would like to get some feedback from fellow cancer warriors that have had bad leg pain as a side effects from chemo. I could not walk for quite a while due to the cancer cells being shed into my blood stream, the pain was like having gout some days I could hardly get out of bed. I have now excess weight on the tops of my legs which is effecting my knee joints which get arthitis, I am heavier now than when I was having chemo. I have managed to lose nearly 3.8 kilos which does help with the knee pain. I am now trying to walk at least 30 minutes my doctor has now given me Allurpinoi tablets which has helped at lot. Thank you for your advice in advance.
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August 2020
Hi Antan I have had two petscan one was for about 45 mins to me the first one was such a long time I was ready to leave and then they said I was only halfway thru this was when I was diagnosed with lymphoma. The second one after treatment I had to learn a way, I found that by meditating. When I was lying down on the table with the machine going up and down I decided to close my eyes and stay still as possible. I relaxed my whole body and well as my thinking I thought of lovely relaxing scenes in my mind like walking along a beach with bare feet feeling what the sand would feel between my toes and the breeze in my face and another scene is lying back near a waterfall with my eyes closed hearing the gentle sound of the water. Within no time the techician guy tapped me on the shoulder and that was it I was finished. Have you ever learn to meditate it was the best thing I was so relaxed. You must be relaxed before you go into the appointment. Please try it, it helped me.
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August 2020
I am presently going thru immunotherapy after getting non hodgkins lymphoma I am very worried about getting COVID-19. I have had only two sessions of Rixitimab which boost my immune system which I believe is only 80% effective. Before getting lymphoma I got pneumonia and ended up in hospital after only three weeks with also a broken rib. I had no way of getting well as my immune system was impaired, this is what worries me about the virus, but cant help worrying and getting anxious when I am in crowded area. How do other people cope with this and are other cancer patients affected as well or just lymphoma as it is cancer of this lymphatic system.
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April 2020
Iyana271 I think you may have got the post mixed up it is not me having the pain but Andrea0613. You need to go into her post directly and comment to her.
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April 2020
Colin 81 if you had Rixtumab so frequently in 2005 people like you and Bushwalker had bad reactions so that probably why they space mine out to once every 3 months. I must say when I was going thru RCHOP the Rixtumab was marvellous stuff it was really helping my immune system out I hardly got any side effects (or very little) and when I got to my 5th chemo my white blood count was down( but my hair starting to grow back too which was surprising) the next treatment it was back up there again. Colin have been in remission since 2005.
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April 2020
1 Kudo
Dear Bushwalker. Thanks for your advice. So sorry you have so many problems with your treatment. Dealing with this illness can be quite exhausting some times. But overall I am trying to stay positive and get on with my life.
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