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debbiev
Occasional Contributor
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yesterday
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yesterday
1 Kudo
Hi Mini-meme Can I just say to you do not go into Google and ask for any medical advice that only worries you and often the advice is not true. Only go onto site Cancer Council sites of actual medical websites. At the beginning of my journey with lymphoma I went into Google who mentioned that my lymphoma deadly and there is no hope. That automatically scared me and made my anxiety levels go up which doesnt help. I later learnt there are marvellous cures for all cancers now as there are wonderful medical people finding out new things all the time. Please keep positive as I strongly believe keeping the mind positive will make your whole body positive because this has been proven for my journey.
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yesterday
Yes Iyana I am on rixtuximab injection every three months. My 1st one was on 14th February. Some days I get rather tired but that is one of the side effects. My next one is 14th May. I did have follicular lymphoma. Iyana I just take each day as it comes and if I think about anything and it is not urgent I write it down to discuss with my cancer doctor next time I see him, or I ring him if it is urgent. This treatment goes for 2 years.
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Thursday
Hi Iyana271 So sorry to hear about your diagnosis. You have friends here please keep us informed your progress. There is some of us here that have gone thru some of the treatment that you are likely to go thru although we might not have had the same cancer they do have same sort to treatment. For example I have gone thru chemotherapy and now in remission but are going thru immunotherapy so if there is any questions you would like to ask please do. We all have your back here and will help as much as we can. Good Luck we send our prayers to you.
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Monday
1 Kudo
Hi Nicola 1 Thanks so much for your comments, I feel that this cancer I used to have has changed my life completely and it has put things in perspective. As my wonderful cancer doctor has said to be that any type of cancer does this to you he says to me to put myself first and keep moving forward. I feel after your comments I cannot afford to carry anyone in my life that doesnt support me. I must keep moving to grow and learn things in life to make me a better person and feel I have done this thru my cancer treatment. Thank you again Nicola and i wish you the best for the future and prayers to your Dad.
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2 weeks ago
2 Kudos
Dear Katkit I have not spoken to my friend since that last endeavour with her. I feel after having cancer and the high and lows of this I really dont like confrontation with people any more and now I tend to just walk away from any upset. This friend comes from a big family who are very supportive of each other and have always been there for each other. She admits to me she cant imagine what it is like being me being alone with no family system. So I think when I am with her she makes me feel inferior this is why I have kept my distance, and personally feel disappointment and let down in this relationship with her. I am now going out more socially and now meet more positive people in my life that make me feel more relaxed and appeciated.
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3 weeks ago
3 Kudos
Jacob this is the most frustrating and stressful time of cancer treatment when I was diagnosed last August it took about 15 days for the pathology test results to come back and three separate opinions. It seems senseless to you and me at the time but they have to be sure that they diagnose properly. For example I was diagnosed with Non hodgkins follicular lymphoma I later learned there is about 60 different types of lymphoma hence the correctness of the pathology Please keep a positive attitude at all times this is most important.
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3 weeks ago
1 Kudo
deejjay I can understand having just gone thru cancer myself and talking to my doctor having this illness has really changed my life and he agreed that it does. I look at it are some so called friendship really worth it. You really need supportive people around although some people can start being supportive they change and I think that is the time we need to change as I have recently. See my comments above I seem to being going thru the same thing like you are.
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3 weeks ago
I would like to know what people think and what I should do about this situation. My friend who I have know now for over 30 years has been very dismissive and downright rude towards me when I want to either make any comment about my lymphoma or in fact in other subject. She also has a friend that is dying of pancreatic cancer. Hence when I raised the subject of my lymphoma she would just brush me off saying that my cancer is not as bad as this other womans or just change the subject. I know it is not I cant do anything for her, but any cancer is not good. I recently went away on holidays for a week and decided I would not being looking back on how my lymphoma was now I have been cleared of it and also made the decision not to wear a hat or wig. My hair is obviously sort and quite grey I have this person stare at me when I saw made me quite annoyed and then have her dismiss me again was the last straw. Now she wants to catch up with me and talk because I have ignored her for weeks I am not ready to do this. I said to her niece I would rather move on in my life and meet more positive people. Would do you think I should do about this situation.
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February
Mandy I really know how you feel, and people who never had cancer dont really understand. You are strong and feel you have to be able to cope but you are not having an easy ride. I was thinking when I was reading your post about you being able to get some help thru your family doctor, e.g. being referred to a conscellor that deal with cancer. If you could possibly be able to offload everything onto someone else it would be so helpful to you. Just because you are strong doesnt mean you dont need help, it is not a sign of weakness or not being able to cope it is just that having cancer is such a hard road to travel and very emotional I know because I have travelled this road myself. I received my pet scan results before Christmas which showed all clear, but it is trying to rearrange your life a different way. Ask at the hospital if they have anyone to help you or as I said before go your doctor and seek help., dont be put off. All these worrying and stressful situations dont help you at all with your health. Please get back to us to let us know how you went.
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January
I have just had a all clear report from my cancer doctor before christmas that all my lymphoma has gone. I am really worried about people talking about you could possibly get another cancer. I have tried not to worry but anything that happens I see it could be cancer. While I was on chemo treatment one of the effects I got was extremely dry skin everywhere was dry my fingers the bottom of my feet. I now find I had to start off a small red raised itchy patch around my nipple area has got bigger and itchy it does help to put dry skin cream on it. I start to worry is it Pagets disease I have read this is a type of breast cancer. I am going to a female doctor tomorrow for her to check out. Has anyone had this problem and advise me should I be worried.
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