Thankyou, I have now had five pet scans and I now fall asleep in them despite being claustrophobic I have found switching off and shutting eyes and falling asleep helps! All clear until two weeks ago biopsy showed return of scc in lip so back to the drawing board... Efudix first, then maybe surgery  ... View more

Hi @Azjoetrucker  We haven't heard anything from you in a while so thought I would checkin. Hope everything is well.   ... View more

I'm not sure I have an answer for you, other than, you're not alone. I've been having treatment for lymphoma, which thankfully is going well, but the emotional rollercoaster still hits me super hard sometimes. Keep reaching out to people, try to socialise as much as possible (however you can and on your terms) ... View more

If they know your situation then I guess their attitude towards you would change. For me, I go for long walks and try to reflect on myself. ... View more

I agree with CaptainAustrali. Conquer your issues, don't let them conquer you. ... View more

Hope you are doing okay now, sanitize and eat healthy all the time! get well ... View more

Saw the radiology oncologist last week.  Nup - unless I have chemo  first,  it's not going to happen.   Where the primary cancer is located is very close to the Pulmonary artery,  the secondaries are over the Aorta.   I also have an Aortic aneurysm, located very close to the secondaries.   Is referring me to the palliative team.   Of course all of this takes, what seems to be a hell of a long time.    I started this journey in about July last year.     ... View more

Hi Debbiev,   I am very pleased that the RCHOP worked for you, our doctors are learning new stuff all the time and modifying the treatments accordingly. I hope you remain well 'forever'.   But for me I am sorry to say I have not been in remission since 2005, in fact I have had two more different cancers and a stem cell transplant, now after all these years I am now in I guess what you could call remission, I look at it as having been cured 'for now'.   I was diagnosed with CLL in 2011, it went stage 4 in 2015. Five doses of FCR chemo (should have had 6 but much too ill), never fully recovered, blood numbers were always too low.   In 2016 I was given an 'absolute' clearance for CCL, on the same consultation I was diagnosed as terminal MDS with less than 12 months to live. Started on Azacitidine ( I think) 14 doses each month. Very lucky to be put onto a bone marrow stem cell transplant program (because of my age) which I had in early April 2017.   Had to cease the chemo (Azacitidine) to do the transplant, took quite a few months to arrange, quite ill. The transplant process for me was extremely difficult, mentally and physically, several months in an hospital isolation ward, a few complications (fewer than most), back into hospital a few times, quite a few 'legacy' issues still with me but some seem to be improving with time. Celebrated the 3rd anniversary a few weeks ago.   Still here, still okay. ... View more

Iyana271   I think you may have got the post mixed up it is not me having the pain but Andrea0613.  You need to go into her post directly and comment to her.     ... View more

Thanks for the update Debbiev.  It’s sounds like there might be a little bit of a turn around. Your friend is making the first step to a friendship rebuild. GOOD.   I hope it works out well, for you. A little COVID rest, can’t be a bad thing, take advantage of that.   Best wishes & good luck with your friend.   Lindsay ... View more